Populations and Genetics: Legal and Socio-Ethical Perspectives

Synopsis

Genetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed.In this age of international biobanking involving populations, are current legal and ethical approaches sufficient? This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over.

Additional information

Contributors:
Includes content by:
  • Frances C. Rawle
  • Andres Rannamäe
  • Geneviève Cardinal
  • Mylène Deschênes
  • Claudine Fecteau
  • Frances C. Rawle
  • Andres Rannamäe
  • Geneviève Cardinal
  • Mylène Deschênes
  • Claudine Fecteau
  • Simone Truong
  • David Gurwitz
  • Orit Kimchi
  • Batsheva Bonne-Tamir
  • Satoru Miyazaki
  • Yoshio Tateno
  • Nicole Palmour
  • A. Cambon-Thomsen
  • I. Hirtzlin
  • N. Préaubert
  • C. Dubreuil
  • J. Duchier
  • B. Jansen
  • J. Simon
  • P. Lobato de Faria
  • A. Perez-Lezaun
  • B. Visser
  • G. Williams
  • J.C. Galloux
  • Richard G.H. Cotton
  • Ourania Horaitis
  • Eric T. Juengst
  • Erica Haimes
  • Michael Whong-Barr
  • Michele A. Lloyd-Puryear
  • Penny Kyler
  • Gloria Weissman
  • Sandra Soo-Jin Lee
  • Barbara A. Koenig
  • Fern Brunger
  • Jon F. Merz
  • B. Elger
  • A. Mauron
  • John A. Robertson
  • Darryl Macer
  • Darren Shickle
  • Rhydian Hapgood
  • Jane Carlisle
  • Phil Shackley
  • Ann Morgan
  • Chris McCabe
  • Mary R. Anderlik
  • Patrick F. Terry
  • Huanming Yang
  • Ted Schrecker
  • Lorraine Sheremeta
  • E. Richard Gold
  • Timothy Caulfield
  • Robert Cook-Deegan
  • Leroy Walters
  • Lori Pressman
  • Derrick Pau
  • Stephen McCormack
  • Janella Gatchalian
  • Richard Burges
  • María Graciela De Ortúzar
  • Halla Thorsteinsdóttir
  • Abdallah S. Daar
  • Richard D. Smith
  • Peter A. Singer
  • Chris Macdonald
  • M. B. Marques
  • Daryl Pullman
  • Andrew Latus
  • Martin Richards
  • Charles Black
  • Moussa Charafeddine
  • Dorothy C. Wertz
  • Jackie Leach Scully
  • Christine Rippberger
  • Christoph Rehmann-Sutter
  • Claude Laberge
Publisher: Place of publication:
  • Boston
Publication year:
  • 2003