My Battle to Find the Right Support; THERE Seems to Be Support Groups and Charities for Every Illness These Days, but What If You Are the Parent of a Child Whose Symptons Don't Fit Any of the Accepted Illnesses? Where Can You Turn for Support? KAREN HAMBRIDGE Speaks to a Mum Who Battled against the System to Get Help for Two of Her Children and Who Found Support Thanks to a Unique Charity

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Byline: KAREN HAMBRIDGE

SHARON LYCETT knows what it's like to feel isolated as a parent - and not just because you're at home all day changing nappies.

Two of the 36-year-old Bedworth mum's children have complex physical and educational difficulties. But neither child - 13-year-old Kayleigh and 11-year-old Nathan - can be pigeon-holed as having one specific condition.

It means any support, emotional or practical, is hard to come by as there is no single charity or social agency which can meet the needs of Sharon and her family.

So when she came across SWAN it seemed a Godsend.

SWAN - Syndromes Without a Name - is a charity set up to help raise awareness of children who suffer from undiagnosed disorders.

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