The Exceptional Parent

Exceptional Parent is a magazine providing practical information and guidance to parents of children and young adults with disabilities and the professionals who serve them. It was founded in 1971 and is published monthly by Psy-Ed Corp.Subjects include disabilities. The editor in chief is Rick Rader.

Articles from Vol. 31, No. 3, March

Breaking the Sound Barrier
Role Model Jo Waldron has risen to the challenge of making sure her voice, and those of others with disabilities, are heard--in the board room, the classroom and all across the country. Editor's Note: This month, Exceptional Parent is proud to welcome...
Camping out, Fitting In
Summer camp is every teen's rite of passage. It is a time when adolescents can be away from the watchful eyes of their parents, bond with peers, and experience independence. The Shake-a-Leg Body Awareness Therapy Program for Teens (SALBAT), in Providence,...
Camp Loyaltown
My sister, Lauren Bernstein, has had the opportunity to go to a special sleep away camp called Camp Loyaltown, where she can participate in activities such as music, swimming, and arts and crafts. Lauren, who is 19, has Sturge Weber syndrome, is legally...
Can't Keep Katie Down
Chris Jeannin knew something was wrong with her daughter, Kaitlin, in May of 1997. Known as Katie, the once happy-go-lucky six-year-old had become a very different child--angry, uncooperative, refusing to take part in anything going on around her....
Caring for Christen's Clusters
When Patsy Estes lost her husband in an automobile accident in 1992, she knew it would be difficult being a single mom to raise three daughters: Amanda, 17; Ashley, 8; and Christen, 5. She did not, however, know that three years later epilepsy would...
Child Neurology Society
A resource for professionals and parents faces a crisis in the field What is a child neurologist? A child neurologist is expert in the diagnosis and treatment of children with disorders of the central nervous system, which include the brain and...
Curing Epilepsy: Looking to the Future
A special conference entitled "Curing Epilepsy: Focus on the Future," was held March 30 to 31, 2000 at the National Institutes of Health. The purpose of the conference was to bring together leading scientists in several fields to discuss innovative...
"Cyber Summer Camp"
Promotes Learning in the internet Age After two years of imagining what it would be like to design a Web page, 12-year-old Mike finally had the opportunity to do it last summer. Mike created a store for an "e-Mall" while at computer camp run by...
Familiar Faces
HAILEY ANN Hailey Ann Plucker, (16 months old in this picture) is a real trooper! Hailey has Down syndrome and has already gone through two open-heart surgeries--one at 3 months and one at 9 months. Her mom, Shed, says that Hailey, their "special...
First Aid for Seizures
WHAT IS "FIRST AID"? As the name implies, first aid is the help that one gives initially--at the onset of an event or immediately after at the site where the event is happening. This takes place before medically organized help arrives and before...
Genetics and Epilepsy: What We Know Today
The importance of genetics in epilepsy has long been recognized. Dispelling the notion that epilepsy was a sacred disease, Hippocrates, in the fourth century B.C., argued that epilepsy was inherited. During the last decade there has been an explosion...
Happy Camping
Thanks to accessible camps, everyone has the opportunity to enjoy the outdoors and build lifelong friendships. For most people, summer camp is a childhood staple. A place where newfound abilities are discovered, independence tested, lifelong friendships...
Hasc Summer Program
Nestled among the cool mountains of New York's Catskills, surrounded by verdant fields, the HASC Summer Program is no ordinary summer camp. Nearly three decades ago, Camp HASC (a not-for-profit agency), made a commitment to provide a residential summer...
Looking "Up" to My Little Sister
I would like to tell you about a person I admire, Arden Sakin, my younger sister. Arden cannot do things other kids do. She has trouble walking, running, balancing, and doing many other things that have to do with her legs. In the winter her hands...
Never Give Up Hope
When confronted with their son's life-threatening illness, and the dangers involved in the treatment, one family continued to research other possibilities. Clouds on the horizon Almost two years ago, our son Justin, now 11, became ill. He was...
New Products
ANIMATED PUZZLES This computer software teaches problem solving skills and spatial relationships. The user selects from 55 photo-realistic pictures, which are then scrambled into 12, 24, 48, or 96 pieces. Using the computer mouse, the user clicks...
Pediatric Clinical Trials
Research holds the key to the future and to making current treatments safer for children About four out of five drugs used to treat conditions in children today have never been tested in children. This startling statistic from the American Academy...
Princeton Speech & Language Center
This was the first year I had to find a summer program for my daughter Stephanie. Previously, she had been in year-round early intervention programs and then nursery school summer camps. I thought we might be in trouble when the special camp recommended...
Search & Respond
S Custom home plans We adopted a 4-year-old daughter with multiple disabilities. My husband and I are interested in drafting custom home plans for our daughter so that we can manage her as we all age, and she grows. Do you know of any resources...
Struggling against Daily Seizures
Stephen and Vicki Brown's introduction to epilepsy was quite traumatic. In June 1994, just two months shy of three years old, their daughter, Genevieve--Geni--experienced her first seizure: a five-minute grand mal convulsion. At the time, she was being...
The Letter of Intent
(Part 2 in a Series of Articles) Planning for the future can present some overwhelming emotions for parents. No one likes to think about his or her own death or possible disability. However, these are real circumstances for which preparation is...
The "Soap" Opera of Medical Research
The annual Medical Research issue is, historically, an opportunity to showcase the latest news-breaking, eyebrow-raising, Buck Rogers-style innovations that will, it is hoped, impact on our lives and on the lives of our children with special healthcare...
Wilson's Disease
Wilson's disease is a rare genetic disorder that affects approximately 1 in 30,000 people worldwide, regardless of race or nationality. While small amounts of copper are essential to good health, Wilson's disease is characterized by excess storage...