Genetic Screening

Genetic Screening - testing for genetic disorders. Most commonly, prospective parents or a fetus is tested when a specific genetic disorder is suspected (e.g., Tay-Sachs or sickle cell disease). In such a case, genetic screening begins with a complete medical history of both parents. If the parents decide to conceive or have already conceived, diagnostic tests, such as chorionic villus Read More...

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Genetic Screening

1 .

Risk, Age and Pregnancy: A Case Study of Prenatal Genetic Screening and Testing
by Bob Heyman, Mette Henriksen. 242 pgs.

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Risk, Age and Pregnancy provides an in-depth case study of the operation of a prenatal genetic screening and testing system. The authors integrate observational, qualitative interview and survey data, exploring the perspectives of pregnant women, hospital doctors and midwives, and the communication between women and the hospital doctors who advise them. The book offers insights relevant to those concerned with the rapidly growing field of genetic risk management.

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Title Page

Contents

List of Figures

List of Tables

Acknowledgements

Introduction

1: The Constitution of Down's Syndrome as a Risk Entity

2: Age and Pregnancy

3: The Offer of Genetic Screening/testing

4: Women's Decisions about Genetic Tests I: Values and Probabilities

5: Women's Decisions about Genetic Tests Ii: Time Management and Outcomes

6: The Hospital Consultation I: the Pre-Test Risk of Genetic Abnormalities

7: The Hospital Consultation Ii: Risk and Genetic Screening/testing

Conclusions

References

Name Index

Subject Index
2 .

Future Perfect: Confronting Decisions about Genetics
by Lori B. Andrews. 266 pgs.

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Contents

Acknowledgments

1: Genetics Enters Our Lives

2: Competing Frameworks for Genetics Policy

3: The Impact of Genetic Services on Personal Life

4: The Changing Face of Parenthood in the Genetics Era

5: The Impact of Genetic Services on Women, People of Color, and Individuals with Disabilities

6: Problems in the Delivery of Genetic Services

7: The Impact of Genetics on Cultural Value and Social Institutions

8: Which Conceptual Model Best Fits Genetics?

Notes

Index
3 .

Children of Choice: Freedom and the New Reproductive Technologies (Chap. 7 "Selection and Shaping of Offspring Characteristics: Genetic Screening and Manipulation")
by John A. Robertson. 272 pgs.

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Cloning, genetic screening, embryo freezing, in vitro fertilization, Norplant, RU486--these are the technologies revolutionizing our reproductive landscape. Through the lens of procreative liberty--meaning both the freedom to decide whether or not to have children as well as the freedom to control one's reproductive capacity--John Robertson, a leading legal bioethicist, analyzes the ethical, legal, and social controversies surrounding each major technology and opens up a multitude of fascinating questions: Do frozen embryos have the right to be born? Should parents be allowed to select offspring traits? May a government force welfare recipients to take contraceptives? Robertson's arguments examine the broad range of consequences of each reproductive technology and offers a timely, multifaceted analysis of the competing interests at stake for patients, couples, doctors, policymakers, lawyers, and ethicists.

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Children of Choice: Freedom and the New Reproductive Technologies

Contents

Preface

Children of Choice

Chapter 1: Introduction Technology, Liberty, and the Reproductive Revolution

Chapter 2: The Presumptive Primacy of Procreative Liberty

Abortion and Contraception

Chapter 3: Abortion, Contragestion, and the Resuscitation of Roe V. Wade

Chapter 4: Norplant, Forced Contraception, and Irresponsible Reproduction

Assisted Reproduction

Chapter 5: IVF, Infertility, and the Status of Embryos

Chapter 6: Collaborative Reproduction Donors and Surrogates

Quality Control

Chapter 7: Selection and Shaping of Offspring Characteristics Genetic Screening and Manipulation

Chapter 8: Preventing Prenatal Harm to Offspring

Extensions and Limitations

Chapter 9: Farming the Uterus Nonreproductive Uses of Reproductive Capacity

Chapter 10: Class, Feminist, and Communitarian Critiques of Procreative Liberty

Notes

Index
4 .

In Search of the Perfect Child: Genetic Testing and Selective Abortion, in The Christian Century
by Ted Peters. 4 pgs.

Magazine Article

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5 .

Genes: A Philosophical Inquiry ("Genetic Screening" begins on p. 93)
by Gordon Graham. 196 pgs.

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'It's all in the genes'. Is this true, and if so, what is all in the genes? Genes: A Philosophical Inquiry is a crystal clear and highly informative guide to a debate none of us can afford to ignore.Beginning with a much-needed overview of the relationship between science and technology, Gordon Graham lucidly explains and assesses the most important and controversial aspects of the genes debate: Darwinian theory and its critics, the idea of the 'selfish' gene, evolutionary psychology, memes, genetic screening and modification, including the risks of cloning and 'designer' babies.He considers areas often left out of the genes debate, such as the environmental risks of genetic engineering and how we should think about genes in the wider context of debates on science, knowledge and religion. Gordon Graham asks whether genetic engineering might be introducing God back into the debate and whether the risks of a brave new genetic world outweigh the potential benefits.Essential reading for anyone interested in science, technology, and philosophy, Genes: A Philosophical Inquiry is ideal for those wanting to find out more about the ethical implications of genetics and the future of biotechnology.

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Title Page

Contents

Preface

1: Science and the Self-Image of the Age

2: Genetic Explanation

3: Genetic Engineering

4: Playing God

Bibliography

Index
6 .

Genetic Privacy: A Challenge to Medico-Legal Norms ("Genetic Information and Testing" begins on p. 101)
by Graeme Laurie. 335 pgs.

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The issue of rights to genetic information is considered in this study from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a concept of privacy and property rights for the person, and argues for stronger legal protection following new developments in genetics. This book will interest lawyers, philosophers and doctors concerned with genetic information and issues of privacy, as well as genetic counselors, researchers and policy makers worldwide for its practical position on dilemmas in modern genetic medicine.

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Title Page

Contents

Preface

Table of Cases

Table of Legislation

International Instruments

Miscellaneous Documents

1: Health Care, Patient Rights and Privacy

2: Privacy: Anti-Social Concept or Fundamental Right?

3: Human Genetics and Genetic Privacy

4: Autonomy, Confidentiality and Privacy

5: Privacyand the Public Interest

6: Privacy and Property?

Index
7 .

Genetic Knowledge: Human Values and Responsibility ("The Present State of Genetic Knowledge and Implications for Genetic Screening" begins on p. 113)
by Jacquelyn Ann K. Kegley. 284 pgs.

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Addresses the many value, scientific, & public policy issues surrounding the use of genetic knowledge. Important questions are raised about the definitions of health & disease, personhood & family. Ethical & legal issues concerning individual right & responsibility versus communal good & responsibility, concerning discrimination, stigmatization & the right of privacy are discussed. Issues include ethic & ethos of responsibility such as the notion of responsible, preventive medicine, genetic carrier responsibility, responsibility for family & for future generations. The perspective is interdisciplinary & multi-cultural.

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Title Page

Table of Contents

Introduction

Genetic Information: Caution, Cooperation, and Human Values

Section I: The Present State of Genetic Knowledge: What We Know and What We Do Not Know

The Human Genome: Facts, Enigmas, and Complexities

The Nature of Polygenic Diseases: Toward a Holistic Theory of Biology

Section II: The Concepts of "Genetic Health" and "Genetic Disease": Do They Make Sense?

Genetic Information and Genetic Essentialism: Will We Betray Science, the Individual, and the Community?

Reductionism in Medicine?: Genetification of Concepts of Health and Disease?

Treatment of Genetic Disease: Who is the Patient?

Section III: The Present State of Genetic Knowledge and Its Implications for Health Care

The Present State of Genetic Knowledge and Implications for Genetic Screening

Genetic Knowledge and Human Values: a Clinician's View

Section IV: Genetic Knowledge Viewed from Ethnic, Cultural, and Religious Perspectives

Amniocentesis and Gender Discrimination in India

A Chinese Perspective on the Use of Genetic Knowledge

Genetic Screening, Sickle Cell Anemia, and the African and African-American Perspectives: the Ethics of Screening and Counseling

Islamic Perspectives on Genetic Technology and Information Use

Section V: Public Policy for Genetic Knowledge and Its Use

Public Policy Issues: Genetic Knowledge and Its Use

Legal Implications of Genetic Screening and Counseling

Bibliography

Glossary of Genetic Terms

Index
8 .

Encyclopedia of Reproductive Technologies (Chap. Five "Genetic Diagnosis")
by Annette Burfoot. 428 pgs.

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Title Page

Contents

Tables and Figures

Preface

Acronyms

Part One: Theories of Reproduction-- Ancient to Contemporary

One: Historical Perspectives of Human Reproduction

Two: Infant Feeding

Three: Sex Preference

Four: Genetic Engineering

Five: Genetic Diagnosis

Six: New Definitions of Family

Seven: Response of the Catholic Church to New Reproductive Technologies

Eight: Reprotech: a Feminist Critique of the Language of Reproductive Technologies

Nine: New Reproductive Technologies-- Women and Science

Ten: New Reproductive Technologies as Dystopia

Part Two: Early Reproductive Technologies

Eleven: Birth Technology

Twelve: Birth Technologies: Critical Perspectives

Thirteen: Breastfeeding

Fourteen: Infant-Feeding Technologies

Fifteen: Contraception Technologies

Sixteen: Contraception--Ethics

Seventeen: Diethylstilbestrol (des)

Eighteen: Menstrual Disorder Technologies

Nineteen: Female Circumcision/ Female Genital Mutilation

Twenty: Abortion Technologies

Twenty-One: Abortion--Ethics

Twenty-Two: Adoption and Restrictions on Abortion--Ethics

Twenty-Three: Prenatal Harm

Twenty-Four: Informed Consent and Women in Labor

Twenty-Five: Reproductive Health in the Workplace

Twenty-Six: Contemporary Midwifery

Part Three: Early Infertility Treatments

Twenty-Seven: Artificial Insemination

Twenty-Eight: Artificial Insemination Policy

Twenty-Nine: Psychosocial Implications of Donor Insemination

Thirty: Lesbian Access to Donor Insemination

Thirty-One: Male Infertility

Thirty-Two: Ovulation Induction

Thirty-Three: Risk Perception and Health Screening

Thirty-Four: Prenatal Diagnosis Technologies

Thirty-Five: Prenatal Diagnosis-- Critical Perspectives

Thirty-Six: Sex Selection

Part Four: Advanced Infertility Techniques

Thirty-Seven: In Vitro Fertilization Overview

Thirty-Eight: In Vitro Fertilization-- Historical Development

Thirty-Nine: Ovarian Suppression by Gnrh Agonists

Forty: Human Pituitary Hormones and Creutzfeldt-Jakob Disease

Forty-One: In Vitro Fertilization-- Culture Media

Forty-Two: In Vitro Maturation and Ova Freezing

Forty-Three: In Vitro Fertilization and Male-Factor Infertility

Forty-Four: Gamete Intrafallopian Transfer (gift)

Forty-Five: In Vitro Fertilization--Risks

Forty-Six: Counseling

Forty-Seven: Selection and Assessment for Treatment

Forty-Eight: Egg Donation

Forty-Nine: Surrogacy

Fifty: Baby M Surrogacy Case

Fifty-One: World Health Organization Report on the Place of in Vitro Fertilization in Infertility Care

Fifty-Two: Advanced Infertility Technologies and Occupational Environments

Fifty-Three: Informed Consent and Advanced Infertility Technologies

Fifty-Four: Legislation-- United Kingdom

Fifty-Five: Legislation-- the Netherlands

Fifty-Six: Legislation--France

Fifty-Seven: Legislation--Australia and New Zealand

Fifty-Eight: Legislation--Canada

Fifty-Nine: Legislation-- the United States

Sixty: Legislation-- Germany

Part Five: Reproductive and Genetic Science

Sixty-Two: Embryo Research

Sixty-Three: Embryo Research-- Legal Issues

Sixty-Four: Cloning Technologies

Sixty-Five: Cloning--Ethics

Sixty-Six: Preimplantation Genetic Diagnosis

Sixty-Seven: Genetics-- Discrimination

Sixty-Eight: Genetic Counseling

Sixty-Nine: Ectogenesis

Seventy: Genetic Screening and German- Based Eugenics-- Old and New

About the Editor and Contributors

Index
9 .

Prenatal Genetic Screening: The Enigma of Selective Abortion, in Journal of Law and Health
by David Stoller. 20 pgs.

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10 .

Ethics and Research with Children: A Case-Based Approach (Chap. 11 "The Ethics of Predictive Genetic Testing in Prevention Trials Involving Adolescents")
by Eric Kodish. 361 pgs.

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Contents

Contributors

1: Ethics and Research with Children: An Introduction

2: Evaluating Benefits and Harms in Research on Healthy Children

3: Optimizing Risks and Benefits: The Case of Rotavirus Vaccine

4: Bioethics Meets the Barrio: Community-Based Research Involving Children

5: Adolescent Research and Parental Permission

6: Recruitment of Pregnant, Minor Adolescents and Minor Adolescents at Risk of Pregnancy into Longitudinal, Observational Research

7: The Ethics of Newborn Screening Diabetes Research

8: Payments for Participation of Children in Research

9: Justice, Lead, and Environmental Research Involving Children

10: Behavioral Research with Children: The Fenfluramine Challenge

11: The Ethics of Predictive Genetic Testing in Prevention Trials Involving Adolescents

12: Research Ethics and Maternal-Fetal Surgery

13: Testing Drugs in Developing Countries: Pediatric Research Ethics in an International Context

14: Research and Innovation in Pediatric Surgery: The Problem of Hypoplastic Left-Heart Syndrome

15: Near the Boundary of Research: Roles, Responsibilities, and Resource Allocation

16: Children and Placebos

17: When Eligibility Criteria Clash with Personal Treatment Choice

18: Involving Children with Life-Shortening Illnesses in Decisions about Participation in Clinical Research

Index
11 .

Multiplex Genetic Testing, in The Hastings Center Report
by The Hastings Center Report. 7 pgs.

Journal Article

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12 .

Genes and Insurance: Ethical, Legal, and Economic Issues
by Niklas Juth, Marcus Radetzki, Marian Radetzki. 170 pgs.

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The authors of this study emphasize the effectiveness of collectively funded public insurances as opposed to genetic information regulation within the private insurance sector. Genetics has provided tools to determine individuals' risk of future disease, which is of key interest for insurance companies in determining insurance premiums; but persons with high enough risk may remain uninsured. For this reason, genetic information has been regulated. But, regulation may not be the solution, according to the authors, and they call for the resumption of social insurance, a key element of the welfare state.

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Title Page

Cambridge Law, Medicine and Ethics

Contents

Preface

1: Introduction

Part I: Starting Points

2: The Terminology and Possibilities of Genetics

3: Opportunities for Insurers to Use Genetic Information

Part II: Social, Economic and Legal Aspects

4: Social Insurance in the Modern Welfare State: Emergence, Maturity and Partial Dismantling

5: International Trade in Personal Insurance

6: Prohibitions Against Discrimination in the Private Sphere: Does Legislation Build on a Consistent Foundation?

Part III: Ethical Aspects

7: Ethical Arguments for and Against the Right of Insurance Companies to Genetic Information

Part IV: Evaluation

8: Conclusions and Policy Implications

Bibliography

Index

Books	Journals	Magazines
Newspapers	Encyclopedia	Research Topics

Books	Journals	Magazines
Newspapers	Encyclopedia	Research Topics

Genetic Screening

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