Issues in Medical Research Ethics

By Jürgen Boomgaarden; Pekka Louhiala et al. | Go to book overview

Introduction

TEMPE (Teaching Ethics: Material for Practitioner Education) is a two-year research project (2000–2002) funded by the European Commission Framework-5 Programme. The title itself was chosen to encompass the research, workshops and production of texts, a CD-ROM and a video all carried out with the intent to explore three major themes: ethics in new reproductive technologies, in medical research itself and in genetics. The chief coordinator of TEMPE is Donna Dickenson, formerly of Imperial College School of Medicine, London, and currently professor at the Centre for Global Ethics, University of Birmingham. Professor Dickenson's experience with a previous open-learning BIOMED-2 project proved invaluable in advising the process of developing TEMPE. Researchers associated with the project come from a variety of disciplines and are affiliated with universities in Greece, Ireland, Germany, Finland, Italy, the Netherlands and the United Kingdom. The project focuses on the development of a set of workbooks, which are open-ended in their intent to provoke thoughtful analysis within the scope of the three core themes in health care ethics, and which are to be made available on a European-wide basis.

Issues in medical research ethics is the result of the partnership between Imperial College, the University of Helsinki and the University of Tübingen.

The authors of this text wish to acknowledge the contribution of all participants of the workshops in medical research ethics held in Tübingen, Germany (July 2000), and in Hämeenlinna, Finland (September 2000), as well as the contribution of the participants in the users' workshop in Tübingen (June 2001). Those who have contributed specific cases, commentaries on cases or articles are acknowledged in the text itself and in the references. A complete list of all participants in the three workshops appears at the end of the workbook.

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Issues in Medical Research Ethics
Table of contents

Table of contents

  • Teaching Ethics: Material for Practitioner Education (Tempe) ii
  • Title Page iii
  • Contents v
  • Contributors vii
  • Introduction 1
  • 1: On the Nature of Research 5
  • 2: Regulation of Research 15
  • 3: Research Versus Consent 41
  • 4: Vulnerable Groups 69
  • 5: The Extent of the Researcher's Duties 87
  • Glossary 99
  • References 104
  • Appendices 108
  • List of Participants 129
  • List of Critical Readers 132
  • Index 133
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