Understanding Autism: Parents, Doctors, and the History of a Disorder

By Chloe Silverman | Go to book overview

INTERLUDE
Parents Speak: The Art of Love
and the Ethics of Care

Disability studies in the university emerged from the disability rights movement of the 1970s and 1980s. Conversations about autism are inevitably also about issues that have occupied both scholars and activists. They range from philosophical questions about defining disability and the ethics of treatment to policies regarding access to health care and living supports, deinstitutionalization and patient’s rights, the Individuals with Disabilities Education Act (IDEA), and inclusive education.

A history of autism focused specifically on parental experience and knowledge cannot hope to incorporate all the lessons that disability studies teaches us, in particular, that we take seriously the accounts of people with disabilities themselves. As I mentioned in the introduction, there are many women and men with autism diagnoses who are capable spokespeople. A number of them are passionate advocates of neurodiversity, the concept of accepting and accommodating atypical cognitive styles and personality types as valuable elements of human difference.1 Advocates insist on the importance of respecting the desires of the person with the disability, first and foremost, in policies and treatments directed at them, a position best expressed in the imperative “nothing about us without us.”2

Many draw on their experience of autism to question not only policies but also psychiatrists’ assumptions, maintaining, for example, that the diagnostic distinction between “low” and “high-functioning” autism is specious. This segmentation fails to acknowledge the range of strengths and weaknesses of any individual. Dividing the autism spectrum, needless to say, divides people. Self-advocates reject the claim that those able to communicate and live without assistance are not qualified to weigh in

-125-

Notes for this page

Add a new note
If you are trying to select text to create highlights or citations, remember that you must now click or tap on the first word, and then click or tap on the last word.
One moment ...
Project items

Items saved from this book

This book has been saved
Highlights (0)
Some of your highlights are legacy items.

Highlights saved before July 30, 2012 will not be displayed on their respective source pages.

You can easily re-create the highlights by opening the book page or article, selecting the text, and clicking “Highlight.”

Citations (0)
Some of your citations are legacy items.

Any citation created before July 30, 2012 will labeled as a “Cited page.” New citations will be saved as cited passages, pages or articles.

We also added the ability to view new citations from your projects or the book or article where you created them.

Notes (0)
Bookmarks (0)

You have no saved items from this book

Project items include:
  • Saved book/article
  • Highlights
  • Quotes/citations
  • Notes
  • Bookmarks
Notes
Cite this page

Cited page

Style
Citations are available only to our active members.
Sign up now to cite pages or passages in MLA, APA and Chicago citation styles.

(Einhorn, 1992, p. 25)

(Einhorn 25)

1

1. Lois J. Einhorn, Abraham Lincoln, the Orator: Penetrating the Lincoln Legend (Westport, CT: Greenwood Press, 1992), 25, http://www.questia.com/read/27419298.

Cited page

Bookmark this page
Understanding Autism: Parents, Doctors, and the History of a Disorder
Settings

Settings

Typeface
Text size Smaller Larger
Search within

Search within this book

Look up

Look up a word

  • Dictionary
  • Thesaurus
Please submit a word or phrase above.
Print this page

Print this page

Why can't I print more than one page at a time?

Full screen
/ 340

matching results for page

Cited passage

Style
Citations are available only to our active members.
Sign up now to cite pages or passages in MLA, APA and Chicago citation styles.

"Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences." (Einhorn, 1992, p. 25).

"Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences." (Einhorn 25)

"Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences."1

1. Lois J. Einhorn, Abraham Lincoln, the Orator: Penetrating the Lincoln Legend (Westport, CT: Greenwood Press, 1992), 25, http://www.questia.com/read/27419298.

Cited passage

Welcome to the new Questia Reader

The Questia Reader has been updated to provide you with an even better online reading experience.  It is now 100% Responsive, which means you can read our books and articles on any sized device you wish.  All of your favorite tools like notes, highlights, and citations are still here, but the way you select text has been updated to be easier to use, especially on touchscreen devices.  Here's how:

1. Click or tap the first word you want to select.
2. Click or tap the last word you want to select.

OK, got it!

Thanks for trying Questia!

Please continue trying out our research tools, but please note, full functionality is available only to our active members.

Your work will be lost once you leave this Web page.

For full access in an ad-free environment, sign up now for a FREE, 1-day trial.

Already a member? Log in now.