National Human Genome Research Institute and the National Institutes of Health Office of Rare Diseases: Launch New Genetic and Rare Diseases Information Center. (NIH Update)
The National Human Genome Research Institute (NHGRI) and the National Institutes of Health's Office of Rare Diseases (ORD) have launched a new information center that delivers free and immediate access to information specialists who can provide accurate, reliable information about genetic and rare diseases to patients and their families, health care professionals and biomedical researchers.
There are more than 6,000 genetic and rare diseases afflicting more than 25 million Americans, but many of these illnesses affect relatively few individuals. As a result, information about these rare disorders may be limited or difficult to find. The new service, called the Genetic and Rare …
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Publication information: Article title: National Human Genome Research Institute and the National Institutes of Health Office of Rare Diseases: Launch New Genetic and Rare Diseases Information Center. (NIH Update). Contributors: Not available. Magazine title: The Exceptional Parent. Volume: 32. Issue: 4 Publication date: April 2002. Page number: 56+. © 1999 EP Global Communications, Inc. COPYRIGHT 2002 Gale Group.
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