applied in clinical settings long before there is sufficient data to support their applications. Consequently, it is important for practitioners to be informed of the limitations of these measures and of the need for data to support their clinical efficacy.
Establishing validity for various clinical applications of measures of HRQOL will be a slow but necessary process that is best facilitated by active dialogue and collaboration among researchers and practitioners in different professional disciplines. In this regard, it will be important for researchers to work closely with practitioners in the development of databases that can be used in clinical settings. Routine use of HRQOL assessment with clinical populations will generate useful information, particularly if gathered over the course of the child's treatment. The integration of research and practice concerning HRQOL assessment would also be enhanced by demonstrating clinical applications of HRQOL measures, and by incorporating measures of HRQOL that have been carefully developed in their practice settings. Finally, the integration of research and practice will be facilitated by conferences and articles that showcase innovative data-based clinical applications of measures of HRQOL.
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Publication information: Book title: Measuring Health-Related Quality of Life in Children and Adolescents:Implications for Research and Practice. Contributors: Dennis Drotar - Editor. Publisher: Lawrence Erlbaum Associates. Place of publication: Mahwah, NJ. Publication year: 1998. Page number: 338.
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