Evaluating the Feasibility of Developing National Outcomes Data Bases to Assist Patients with Making Treatment Decisions

Evaluating the Feasibility of Developing National Outcomes Data Bases to Assist Patients with Making Treatment Decisions

Evaluating the Feasibility of Developing National Outcomes Data Bases to Assist Patients with Making Treatment Decisions

Evaluating the Feasibility of Developing National Outcomes Data Bases to Assist Patients with Making Treatment Decisions

Excerpt

This report examines the potential for, and range of issues associated with, establishing national health outcomes data bases to help patients and their physicians evaluate tradeoffs among various treatment options. Patients are frequently faced with more than one treatment option and often those treatments have multiple outcomes that need to be understood and evaluated in terms of their risks and benefits to the patient. This work builds on previous Agency for Healthcare Research and Quality (AHRQ) sponsored expert meetings funded by the Kanter Family Foundation—which focused on the possibility of developing data systems that would allow patients to share information with other patients about the decisions they had made when confronted with alternative treatment choices and the outcomes they had experienced.

The study is based on a formal review of the shared decision-making literature as it relates to creating decision support tools for patients; on interviews and consultative discussions with patient and physician representatives; and on a review of existing data collection efforts to establish what is feasible, what are the inherent challenges, and what are the lessons from these efforts that could guide the development of national outcomes data bases. This report should be of particular interest to government agencies and professional organizations whose responsibilities include the collection and analysis of data regarding the outcomes of treatment, and the dissemination and use of those results by patients and their physicians.

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