Parenting an Adult with Disabilities or Special Needs: Everything You Need to Know to Plan for and Protect Your Child's Future

Parenting an Adult with Disabilities or Special Needs: Everything You Need to Know to Plan for and Protect Your Child's Future

Parenting an Adult with Disabilities or Special Needs: Everything You Need to Know to Plan for and Protect Your Child's Future

Parenting an Adult with Disabilities or Special Needs: Everything You Need to Know to Plan for and Protect Your Child's Future

Synopsis


Every parent of a child with disabilities knows just how overwhelming and frustrating it can be. When these children enter adulthood, the difficulties can become even greater. Many parents are tempted to keep their children at home, believing that they will be safer and happier under their care. But adults with special needs deserve the same chance at a happy life as everyone else. As the mother of an adult child with disabilities, Peggy Lou Morgan has years of experience dealing with the challenges these adults face every day. She believes that the most loving thing parents can do for their children is to prepare them to leave home in a way that works best for them. In Parenting an Adult with Disabilities or Special Needs, she gives parents invaluable advice on:

teaching their adult child to be a self-advocate
• helping their child cope with relationships
• helping their child find a good vocational program
• finding an apartment and a roommate
• understanding government programs that can help their children while they become more independent

Compassionate and thorough, this guide will help readers to ensure that their children leave the nest with confidence and joy.

Excerpt

Peggy Morgan and I have been sharing our ideas and reflections as well as the daily grind of our lives over the past several years. We are like bookends holding the experience of families living with disability throughout America. Peggy lives in Oregon and corresponds through her website with families throughout the United States and the world, while I live in New York City and support diverse people with disabilities and their families to reach for the best possible lives they can create for themselves. I have worked for 35 years as a professional in the field of disabilities, promoting the values and possibilities related to person-centered work, and I'm also the sister of a brother with complex medical and support needs. Peggy is mother to Billy Ray, a thinker and writer about parenting children with special needs, and a former professional fiduciary. While far apart in circumstance, we see possibilities for people with disabilities through the same lens, and these shared views are the focus of this book.

I love Parenting an Adult with Disabilities or Special Needs: Everything You Need to Know to Plan for and Protect Your Child's Future, because Peggy gets to the heart of the complexity of the task of planning for the future with compassion, common sense, attention to detail, and deep wisdom. As a parent, you will journey with Peggy through your deepest fears related to “what will happen when I'm gone,” to practical advice about day-to-day implementation of both immediate and long-range plans that create the best life possible for your child and yourself, even in the face of the overwhelming demands and relentless challenges of daily life. Peggy does not offer a quick fix or easy answers; instead, she shares the difficult chapters, hard-earned triumphs, and lessons learned from her own life, and her experience with families and professionals throughout the world.

In some ways, 2008 is the best of times for people with disabilities and their families. More than ever in history, people with even the most severe disabilities are working in and contributing to community life; they are serving in leadership roles in both civic life and self-advocacy associations. Some people are becoming well-known as artists, musicians, poets, and in . . .

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