Academic journal article British Journal of Occupational Therapy

Debbie Kramer-Roy: Exploring the Support Needs of Pakistani Families with Disabled Children: A Participatory Action Research Study

Academic journal article British Journal of Occupational Therapy

Debbie Kramer-Roy: Exploring the Support Needs of Pakistani Families with Disabled Children: A Participatory Action Research Study

Article excerpt

Brunel University, 2009. PhD.

Pakistani families with disabled children are among the most disadvantaged population groups in the United Kingdom. Previous research has indicated difficulties with accessing support services as well as problematic attitudes towards disability within the Pakistani community. As no substantial improvement in their situation was evidenced since early studies in the 1990s, a participatory action research study was undertaken with six Pakistani families to explore how an action-oriented emancipatory approach could facilitate them to explore their support needs and how these might be met in further depth. An occupational justice perspective was used to clarify how cultural and familial expectations influenced family members' occupational balance and wellbeing.

After an exploratory phase, in which all family members were interviewed and family interactions observed in their own home, three action research groups were formed for women, men and children respectively. Each group carried out their own action research around their chosen topic. …

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