Academic journal article The Hastings Center Report

The Research Freedom Act

Academic journal article The Hastings Center Report

The Research Freedom Act

Article excerpt

Although the federal Research Freedom Act of 1990 (HR 5456) was defeated last term, its sponsor, Rep. Henry Waxman (D-Cal.), plans to reintroduce the bill in January, according to staff attorney Ruth Katz. Like its predecessor, the new legislation would overturn Health and Human Services Secretary Louis W. Sullivan's indefinite moratorium on federal funding of fetal tissue transplantation.

The Research Freedom Act of 1990 incorporated ethical safeguards recommended in 1988 by the NIH Human Fetal Tissue Transplantation Research Panel, requiring: that fetal tissue be donated without stipulating who may (or may not) receive it; that tile donor not be informed of the recipient's identity; that the research be conducted in accordance with state and local law; and that the sale of fetal tissue be prohibited (Americati Academy of Pediatrics, Government Activity Report, September 1990).

Beyond overturning the funding moratorium, the legislation would significantly limit the Secretary of Health's freedom to restrict not only fetal tissue research, but any biomedical or behavioral research under consideration by the NIH. The bill calls for the secretary to convene a special Ethics Advisory Board, composed of scientific, legal, ethical, and religious experts, with final authority for approval of research proposals. …

Search by... Author
Show... All Results Primary Sources Peer-reviewed

Oops!

An unknown error has occurred. Please click the button below to reload the page. If the problem persists, please try again in a little while.