Academic journal article International Journal of Child Health and Human Development

Challenges in the Field of Ethics regarding Treatment of Children with Special Needs and Complex Conditions

Academic journal article International Journal of Child Health and Human Development

Challenges in the Field of Ethics regarding Treatment of Children with Special Needs and Complex Conditions

Article excerpt

Aleh Jerusalem is home to children and young adults who suffer from multiple disabilities. Their conditions are characterized by severe cognitive disabilities and serious physical handicaps - all are wheelchair-bound and many have complex medical conditions. These conditions present a treatment challenge to Aleh's large multi-disciplinary staff, whose goal is to enable every child to realize their potential and ability as well as to give maximum quality of life to them and their families.

There is a genuine partnership between the Aleh staff and the children's families regarding treatment and the entire decision-making process. The Aleh facility is open to everyone seven days a week throughout all hours of the day, and the families are invited to take a dominant role in all stages of their child's treatment.

One major challenge (or "professional dilemma") involves treatment decisions to children who are categorized as suffering from terminal illness in which life expectancy is short and expected (such as Canavan's disease in its final stages, Tay-Sachs, or other syndromes). When this situation is known in advance, the parents are faced with the question of how their child should be treated when his or her condition deteriorates. In these cases the Aleh staff invites the parents to a meeting with a wide range of staff members, during which the discussion and decisions are recorded and signed by all present members. …

Search by... Author
Show... All Results Primary Sources Peer-reviewed

Oops!

An unknown error has occurred. Please click the button below to reload the page. If the problem persists, please try again in a little while.