The Exceptional Parent

Exceptional Parent is a magazine providing practical information and guidance to parents of children and young adults with disabilities and the professionals who serve them. It was founded in 1971 and is published monthly by Psy-Ed Corp.Subjects include disabilities. The editor in chief is Rick Rader.

Articles from Vol. 32, No. 3, March

An Example of Full Inclusion: Prevention of Oral Diseases. (Part IX)
Many of us consider ourselves advocates working to advance full inclusion of individuals with special needs. Significant progress has been made over the past several decades in improving educational, recreational, work-oriented and social opportunities....
Camp C.A.M.P. a Unique Learning Experience. (Summertime)
The Children's Association for Maximum Potential (C.A.M.P.) was founded in 1979 by Dr. Chris Johnson, then a pediatric resident at the United States Air Force Medical Center in San Antonio, TX. Doctor Johnson was inspired to start C.A.M.P. when, one...
CARES Foundation, Inc. (Organizational Spotlight)
CARES (Congenital Adrenal hyperplasia Research, Education and Support) Foundation, Inc. is a non-profit, educational organization. Its purpose is to educate the public and physicians about all forms of congenital adrenal hyperplasia (CAH), its symptoms,...
Developing "My Dream Portfolio". (Life Planning)
Children with disabilities are routinely discouraged from developing their own self-determined quality of life. Expectations tend to be based on the individual's disability label instead of the individual herself. This has been evident to me in both...
Focus on Pediatric Movement Disorders: Myoclonus. (Ask the Doctor)
Most people take for granted their ability to control their body movement. We will ourselves to move--walk across a room, sit in a chair or simply remain still. For millions of children, however, these simple, everyday acts are frustratingly difficult,...
Gina and the Group Home. (Life Planning)
Gina is a beautiful little girl with chestnut brown hair and big fawn eyes. When she smiles, her cheeks puff up like over-stuffed raviolis and her eyes twinkle. On her good days she will come up to me and wrap her arms around my waist or put her velvety...
Hyperbaric Oxygen Therapy in the Treatment of Brain Injury. (Ucp Research Fact Sheet)
REPORT OF A MEETING On July 25-28, 2001, a meeting was held in which clinicians, clinical investigators and family members reviewed the present status of information about the use of hyperbaric oxygen therapy (HBOT) in the treatment of brain injury....
Looking for Summer Solution. (Instant S&R)
S Our daughter has partial trisomy 13 which has resulted in a speech and motor delay and some developmental delay. Both my husband and I work full-time. Our daughter has spent her summers in a neighborhood daycare center since kindergarten, but this...
Participants Wanted for Clinical Trial for Young Adults with Down Syndrome. (What's Happening)
A large, US-based clinical trial of an investigational drug is currently underway and is recruiting young adults (18 to 35 years old) with Down syndrome to participate. The drug being studied is currently FDA approved for the treatment of mild to moderate...
Providing and Protecting Assets: For a Loved One with a Disability. (Life Planning)
Government benefits are often a lifeline for people with disabilities and their families, but preserving eligibility while maintaining quality of life can be difficult. Many states across the country have addressed this problem by adopting legislation...
Sarah Syndrome: A Mother's View of Having a Child with No Diagnosis. (Parent Perspective)
Despite the more than 6000 known rare diseases, it is still common to hear from parents that their child is either "yet to be diagnosed" or has "no known diagnosis." There is a difference, of course, and it has nothing to do with the diagnostic acumen...
Saving for College with 529 Plans: What You Need to Know. (Life Planning)
According to 2001 Census Bureau data, the benefits of a college education are striking. People with a bachelor's degree 83 percent more, on average, than those with only a school diploma. Over a lifetime, the gap in potential earnings is more than...
Shake-A-Leg Miami: Sailing for Everyone. (Travel)
I had read about the Access Dinghies from Australia that made sailing possible for virtually anyone and even met Graeme Raynor, their "Johnny Appleseed," but seeing them in action last January was a teal thrill. Shake-A-Leg Miami now has 14 of these...
The 5 W's of Finding a Counselor. (Life Planning)
From time to time, families of children with special needs may decide to seek professional counseling to assist them the problems of everyday living. Counseling can be a mysterious process. Often practitioners in the field disagree on what counseling...
The Mystery of Family Research: Parents Magically Change from Invisible to Prominent. (Research Reflections)
Consider this headline: "Parents and families of children with exceptionalities are now key players in the burgeoning field of family research." It wasn't always that way, especially for parents of children who were mentally retarded. Parents of...
"The Only Difference". (Children's Page)
As a child, Laura loved to open and close the bathroom door. She would stand in the hallway, fully clothed in her torn stocking pajamas, engaging herself in this fun-filled activity. Although she was barely tall enough to reach the doorknob, she continued...
The Value of Observant Observation
When I was a medical student I was always amused when a professor began a story by saying "When I was a medical student...." Usually it was a clinical pearl that he or she had learned at the bedside under the tutelage of some great, memorable professor....
Universal Newborn Screening
In 1961, Dr. Robert Guthrie of the University of Buffalo developed a laboratory test to detect phenylketonuria (PKU) in newborns. PKU is an inherited metabolic disorder resulting from an enzyme deficiency; if left untreated, it results in profound...
What the Cruise Passenger Should Know. (Medically Speaking)
Cruise passengers may or may not come on board prepared for their cruise. Some embark with little or no forethought to the situations they may encounter. Even passengers with complicated medical conditions may book a cruise with the thought, "There...
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