The Exceptional Parent

Exceptional Parent is a magazine providing practical information and guidance to parents of children and young adults with disabilities and the professionals who serve them. It was founded in 1971 and is published monthly by Psy-Ed Corp.Subjects include disabilities. The editor in chief is Rick Rader.

Articles from Vol. 33, No. 5, May

A Case Report of Septo-Optic Dysplasia (De Morsier's Syndrome): The Importance of Establishing a Precise Diagnosis in Adults with Severe and Profound Mental Retardation. (the American Academy of Developmental Medicine and Denistry)
De-institutionalization of adults with mental retardation who are also medically complex has resulted in an increased demand for community-based primary care physician services for management of health related issues relevant to that patient population....
Accessible Crested Butte. (Accessibility)
When Jim and Arlene Mathewson's two children, Dana and Scott, started bickering again, they secretly celebrated; at last their family was moving beyond shocked survival toward a sense of normalcy. So Arlene started planning their first family vacation...
A First for Toyota. (Mobility)
Beginning in June, Toyota will make available its first wheelchair-accessible vehicle in the US, the 2004 Sienna Rampvan. This is the first time a major auto manor has introduced a new mobility vehicle at the same time it announced its mainstream counterpart....
Anne Carlsen: A Pioneer Is Remembered
On December 22, 2002, the disabilities community lost one of its most treasured advocates with the death of Dr. Anne Carlsen at the age of 87. But her memory will live on forever. She was truly a lady who never thought of only herself, always the needs...
Associations, Organizations and Interested Groups Find Synergy with the 2003 WCD
"The seminars are great at the WCD. The exhibit floor is extensive. The overall experience is incredible," exclaims Judith R. Duncan, President/CEO, Muscular Dystrophy Family Foundation. "It's wonderful that the WCD continues to stay fresh and exciting,"...
A Stand-Up Routine, or, Some Midmorning Observations on the Politics of Posture. (Editor's Desk)
Robert came into my office this morning and for the first time I looked up. It's not that I hadn't noticed him these past few years, or acknowledged him, or that I had failed to give him my undivided attention. But it was the first time I looked up....
A Story of Grace under Pressure: One Family's Life with Sanfilippo Syndrome
Pundits have defined courage as "grace under pressure." But wordsmiths and philosophers alike would have a difficult time describing the courage of a family with three of four children affected by a rare, degenerative, fatal disease, only one of whom...
A True Calling. (Cover Story)
Tim Wakefield is a professional baseball player. As a right-handed pitcher for the Boston Red Sox, he was among the league leaders during the 2002 season with an ERA (Earned Run Average) of 2.81 and a .204 BAA (Batting Average Against) that placed...
Choosing Seated Mobility Assistive Technology
A family that includes someone with developmental disabilities has unique needs and how to best meet those needs can be a challenge. Today the market place offers a plethora of assistive technology to address the widely varying functional needs of...
Clinical Trials: What Are They and How Do They Relate to Research in Autism? (EP on Autism)
INTRODUCTION Information about "new" treatments for children with autism are brought to the attention of parents through a number of channels such as the news media, word of mouth through other parents, advocacy groups and professional web sites....
Columbia Medical. (Mobility: Special Advertising Section)
Here's the challenge in a nutshell: your child is too tall or too heavy for their infant car seat. You still want positioning, support and of course safely for your child, even though they have outgrown their regular car seat. Fortunately, there is...
DB-Link: National Information Clearinghouse on Children Who Are Deaf-Blind. (Better Speech and Hearing Month)(Organizational Spotlight)
ELIZABETH is the mother of a five-year-old with CHARGE Syndrome. (CHARGE is a complex syndrome involving multiple anomalies of the eyes, heart, throat, genitals and ears, also affecting growth and development.) She needs information to share with her...
Early Testing for Hearing Loss and Jawonio's Success. (Better Speech and Hearing Month)
Jenna Townsend first walked (actually toddled) through the doors of Jawonio's Audiology Department when she was 13 months old. Her parents had concerns about her hearing since Jenna did not seem to respond to most sounds in her environment. In addition,...
Familiar Faces
OWEN Owen Walker Hayes is nine months old in this picture. He was diagnosed with Urticaria Pigmentosa at three months of age. This skin disorder is caused by too much histamine in the system. Owen likes to play with his cousins and his dog, Cleo....
Financing Your Mobility Needs. (Mobility)
The American Association of People with Disabilities (AAPD) strives to empower all people with disabilities, both economically and politically, and works to ensure their civil rights, equal opportunities and equal services. AAPD knows, however, that...
Hero of the Day. (Media)
The story goes like this: Johnnie Jacobson, a boy with cerebral palsy (CP), moves from California to Michigan with his family. There he meets Robyn, a girl whose pet dog goes missing. When the children and their friends discover an uninhabited island...
How to Convince Third Party Buyers to Fund Gait Trainers and Other Walking Devices
Augmentative standing and walking technology is not new. Having to fight for funding for this technology is new. Many state funding agencies are demanding that therapists and physicians clearly document the medical necessity of this equipment. Knowledge...
Martha Lloyd Community Service: Where Family Matters
"Home" should be our safe haven where family nurtures us, encourages us to follow our dreams, and loves and respects us for who we are and can become. Finding that nurturing, safe home for adult children with developmental disabilities is one of the...
Never Give Up, Never Surrender! the Story of Rachelle Renaud and the NDSA National Sports Festival. (Sports)
When Rachelle Renaud was born on November 4, 1986, her mother, Donna, knew something as wrong. Rachelle seemed unaware and unresponsive, but Donna brushed off her concerns until she noticed that, at four months of age, Rachelle wasn't using her left...
New Evidence Exonerates Doctors. (in Depth)
A report issued by the American College of Obstetricians and Gynecologists (ACOG) and the American Academy of Pediatrics (AAP) concludes that the majority of newborn brain injury cases do not occur during labor and delivery. Rather, most instances...
Nicole's Answer: Costello Syndrome
Mark and Melinda Taylor have not had it easy the last few years. Their first daughter, Nicole, suffered from hydrocephalus, a number of developmental delays and a "failure to thrive," the doctor's euphemism for the inability for an infant to grow at...
Occupational Therapy and Pain Management. (Pain)
She will always remain vividly etched in my memory as an enthusiastic, active eight-year-old girl who desperately wanted to participate in all the home, school and recreational activities of her family and peers. However, the pain and swelling of juvenile...
Product History, SleepSafe Beds. (Mobility: Special Advertising Section)
English Ave. Industries, is a company dedicated to serving people with special needs in helping to provide a safe sleeping environment. Originally manufacturers of wood products and custom furniture, English Ave. Industries began development of...
Ride Away. (Mobility)
By most people's standards, Mark Lore was a successful guy. Though he had hitch-hiked up to New Hampshire with $35 in his pocket seven years before, he had become vice president for an employee staffing company. He had done well for himself. But he...
Search & Respond
[S] Seat Belt Help I'm looking for a cover or latch which will prevent my developmentally delayed, deaf son from opening his seat belt in the car. He presses the button, opens it and is all over the back seat. Does anyone know where to buy such...
Southpaw Enterprises. (Mobility: Special Advertising Section)
We've all admired the talents of superior athletes, Olympians who break world records, and athletes who set new standards in their own sports. Many of these athletes have the advantage of superior sensory integration--their brain's ability to acutely...
Sunrise Medical. (Mobility: Special Advertising Section)
The single most effective way to minimize injuries and reduce injury severities in an automobile collision is to provide effective occupant restraint that keeps the occupant in the vehicle and reduces the probability and severity of occupant contacts...
Volker Beds. (Mobility: Special Advertising Section)
Volker Beds are often referred to as the "Healthcare Bed in Disguise." They are ideal for home settings. Built of very high quality materials, all Volker beds are component designed for ease of service throughout their life. Acomplete complement...
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