The Exceptional Parent

Exceptional Parent is a magazine providing practical information and guidance to parents of children and young adults with disabilities and the professionals who serve them. It was founded in 1971 and is published monthly by Psy-Ed Corp.Subjects include disabilities. The editor in chief is Rick Rader.

Articles from Vol. 38, No. 8, August

22q11 Deletion Syndrome: A Mystery No More
Editor's Note: According to the National Organization for Rare Disorders (NORD), "a rare or 'orphan' disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately...
ADHD and Executive Functions: Lessons Learned from Research
Today,attention deficit hyperactivity disorder (ADHD) is the most common and most studied psychiatric disorder of childhood, affecting approximately five percent of school-aged children. That means that there are probably at least two children with...
Adopted Children with Disabilities
"... a higher proportion of adopted children under 18 than biological and stepchildren under 18 had a least one disability." (1) Number of adopted children The 2000 Census marked the first census that included "adopted son/daughter" as a separate...
Alternative Therapies and Methods of Learning
[ILLUSTRATION OMITTED] Daphne was almost two years old. She'd never crawled; in fact, the idea that she could move herself seemed a foreign concept to her. She'd made subtle progress in early intervention, but I knew my feisty daughter was capable...
An Impossible Choice: What Would You Do?
John and Mary were raising their two grandsons, Bill, age 10, and Jim, age 11, both of whom have autism. John and Mary were both working, but with their low incomes, they struggled to make ends meet. The boys' parents were not married, and both had...
A Parent's View of Ohdo Syndrome
We remember clearly the day nine years ago when we went to the hospital to meet our little Wade. There wasn't much of him, less than four pounds. And he didn't look too great either--a large birthmark on his forehead, deeply folded ears that were set...
Cleft Lip and Cleft Palate-What to Know and Who Can Help
Craniofacial defects such as cleft lip and cleft palate are among the most common of all birth defects in the United States, with one in every 600 newborns affected. Cleft lip and/or palate can occur as an isolated condition or may be one component...
Controlling Seizures: Early Studies Show That a New Implantable Device Could Greatly Improve Quality of Life for People with Epilepsy
Gabe Anderson and his dad Tim were playing a game of one-on-one basketball at a Kansas City recreation center eight years ago when the young man suddenly stopped, stared at the backboard, and began describing the moving colors on the "big TV screen"...
Disease Management: What Is It? Why Is It Necessary? How Will It Affect Me?
Editor's Note: The following article on disease management presents a primer to this forward-thinking, proactive approach to healthcare that has great potential for use among the population of individuals with developmental disabilities and other special...
"Don't Laugh at Me, Don't Call Me Names"
EDITOR'S NOTE: REFERENCES CITED OR CONSULTED ARE AVAILABLE UPON REQUEST FROM JHOLLINGSWORTH@EPARENT.COM. Ken is an 8th grader who has Asperger syndrome. He is fully integrated and attends a regular middle school in an affluent, urban community....
Fisher House Homes: The Comforts of Home during Trying Times
Not until a loved one is unable to be by our side do we realize how much we miss them and how important they are to our overall sense of well-being. Not until we are misplaced from our home do we appreciate its comforts. At home, in our own little...
Hooked on a Feeling
[ILLUSTRATION OMITTED] She laughs often and richly, speaks her mind without hesitation, warmly praises others, speaks with pride of family, and treasures her friendships. Deanna VanHook is not an individual going through life without purpose nor...
In Memory of Louise Underwood 1936-2008
In its July 2008 issue, EP featured the indomitable and indefatigable, Louise Underwood, a lifelong advocate for people with disabilities in the state of Kentucky, who had a spirit and reputation that earned her the nickname, The Velvet Hammer. Quoting...
Isovaleric Acidemia
At birth, a simple blood test screens babies for certain rare inherited disorders, including isovaleric acidemia (IVA). These rare disorders, like IVA, are known as inborn errors of metabolism. Early diagnosis and proper treatment can prevent lifelong...
My Daughter's Gain
A friend of ours had volunteered to work in a residential home for adults with special needs. She had the late shift, and every night she heard the crying. It was a new resident to the home, a 42-year-old woman. Weeks passed, yet every night...
Reduction Ad Absurdum
[ILLUSTRATION OMITTED] Thomas Carlyle, the Scottish essayist observed that "man is a tool using animal." We see that in every endeavor and especially in those conducted by exceptional parents. The tool belts worn by exceptional parents include...
School Entry and Exit Planning for Children with Special Needs
A move with a child with special needs can be a challenge to even the most organized parents. Faced with all the details prior to a move, prepare for it by getting a notebook (in a size and style of your choice) to record all of your contacts, with...
Staying Strong Coping with Deployment
This is the second of a three-part series from Health Net, Inc. regarding deployment, its effects on children, and some of the steps that parents can take to ease its impact. The series covers possible behaviors and suggested responses during the times...
Staying Strong: Coping with Deployment
This is the second of a three-part series from Health Net, Inc. regarding deployment, its effects on children, and some of the steps that parents can take to ease its impact. The series covers possible behaviors and suggested responses during the times...
Swallowing: A Professional and Parental Perspective
Nothing would be more tiresome than eating and drinking if God had not made them a pleasure as well as necessity. --Voltaire For humans, successful drinking is a necessity early in life. In fact, swallowing can be observed with ultrasound at...
Ten Suggestions for Discharge Medications: Make Going Home Safer and Easier
Over 75 percent of children with special needs will be admitted to the hospital within the first five years of life. With an average of four admissions during these early years, many children are likely to be prescribed one or more medications when...
The Importance of Being Independent
Every Christmas season, I am sure to watch Frosty the Snowman and Rudolph the Red-Nosed Reindeer. The two scenes that always make me cry are when the evil magician traps Frosty in the poinsettia greenhouse, causing him to turn into a puddle, and in...
The Leaders of Our Future
It is my firm belief that it is our moral responsibility to offer support to our fellow global citizens, whatever their individual needs may be and regardless of how different those needs may be from our own. People all over the world are constantly...
The Quest for the Right School: The Mobile Military Child and SchoolQuest[TM]
Never would a military family describe a Permanent Change of Station (PCS) move as easy. Challenging, maybe! Intriguing, perhaps! But never easy. If that family includes a child with special needs, the level of complexity rises. As the family leaves...
What Is Rett Syndrome?
What is Rett syndrome? This is the typical response I receive from people, including medical doctors, when I tell them my daughter, Maiya, has Rett syndrome (RTT). So just what is RTT? The story of RTT began in 1954, Vienna Austria, when pediatrician...
What's New with Newborn Screening: Newborn Screening Is the Process of Testing and Screening Newborns Shortly after Birth for Certain, Potentially Dangerous, Conditions And/or Impairments-Conditions That Include Everything from Inborn Errors of Metabolism and Other Genetic Disorders to Hearing Impairment
Absent detection through newborn screening, many conditions, like inborn errors of metabolism, do not present until a time period after birth, with some conditions not being diagnosed until even years later. By way of definition, inborn errors of metabolism...
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