The Exceptional Parent

Exceptional Parent is a magazine providing practical information and guidance to parents of children and young adults with disabilities and the professionals who serve them. It was founded in 1971 and is published monthly by Psy-Ed Corp.Subjects include disabilities. The editor in chief is Rick Rader.

Articles from Vol. 43, No. 8, August

50 Years of Newborn Screening: Celebrating the Role of Parents
As we have moved from the development of the first PKU test in Guthrie's laboratory to the passage of the Newborn Screening Saves Lives Act in our nation's capital, the advancements have been innumerable and will only continue. We can attribute these...
Alternative Medicine: More Hype Than Hope?
In 1992, Congress established The Office of Alternative Medicine to facilitate the scientific evaluation of therapies that could improve health and well being, but was usually not included in the educational curriculum or training of physicians. Implicit...
Autism's First Child: I Will Tell Zach about Donald Triplett's Story, Birth to Present. but I Will Focus on the Fact That a Man Born Almost a Century Ago in a Tiny Town Where, like Everywhere Else, Autism Was an Unknown, Was Accepted by His Peers. I Will Tell Him That This Man Was and Is Respected, Valued, and Admired
"Mommy, who was the first boy with autism?," Zach asks me as he flings more paint on his recyclable art project, intent on making a graveyard out of an egg carton. "I'm not sure," I reply, "but I'll look it up on Google." I head upstairs to our...
Autism Speaks Analyzes Military's New ABA Policies
[Autism Speaks Web site: July 26, 2013] TRICARE, the healthcare program for military families, yesterday launched its pilot program to improve and expand its coverage of applied behavior analysis (ABA) for non-active personnel. Autism Speaks has...
Because Health Matters: The Centers for Disease Control and Prevention (CDC) Has Made the Health of People with Intellectual Disabilities a Priority. It Has Funded the Arc to Be Part of the Solution in Promoting and Improving the Health of People with ID
There's a reason that many people with intellectual disabilities (ID) aren't healthy. Chronic social and healthcare barriers present tremendous challenges for this population to access quality care, learn about healthy living habits, engage in regular...
Children's Medical Grants Now Available from the United Healthcare Children's Foundation
The UnitedHealthcare Children's Foundation (UHCCF) is seeking grant applications from families in need of financial assistance to help pay for their child's health care treatments, services or equipment not covered, or not fully covered, by their commercial...
Complementary and Alternative Medicine for Children with Healthcare Special Needs
The reality is that many parents may consider alternative medical systems, manipulative and body based therapeutics, as well as the mind body therapies and the energy health therapies as valued additions to standard therapies. Nevertheless, they may...
Copy That: One of the Most Intriguing, Novel and Exciting Applications of 3D Printers Is in Biotech, Namely Human Tissue Replacement
One of the attributes of aging (okay getting geezer-like) is the opportunity to experience the evolution and transition of ideas, technology and innovation. Take copying. Granted I wasn't around to see how Gutenberg put legions of scribes into the...
Genetics and Your Health: Family Health History Can Be a Critical Factor in a Physician's Care and Treatment Recommendations, but Only the Patient Can Provide This Information
Words like "chromosome" and "mutation" seem like they fit more in a biology textbook than in conversations about family health. However, research consistently shows that your genes can play as important a role in your health as the medications you...
Halting a Genetic Threat: "We Envision Universal Newborn Screening and Early Identification of the Disorder," Says Ann Moser of ALD. "It Was My Husband's Dream to Have This Neonatal Screening Introduced and Implemented Worldwide." Making That Dream a Reality Is Crucial and Holds Great Promise and Hope for Those Who Are Genetically Liable to Develop ALD
Ramon and Martiza Casso loved their first born son, Juan, with all of their hearts. Like many parents they wanted far more for him than they wanted for themselves. And when their second son, Jose, arrived seven years later, they felt the same way....
In Your Face Viewbase
The In Your Face Viewbase is a mounting kit for smartphones and other hand-held devices that can be used by individuals with upper extremity or grasping disabilities. The unit consists of a flexible gooseneck with a lower clamp for attaching to a table,...
July 2013 Update on the Status of ALD Newborn Screening
Last September, the groups from Kennedy Krieger Institute, the MD State Newborn Screening Lab, the Mayo Medical Laboratory, and the ALD family support groups attended the SACHDNC (the Secretary's Advisory Committee on Heritable Disorders in Newborns...
Managing Common Medical Conditions as a Part of Transition Planning
Students with a variety of learning disabilities also have co-morbid medical conditions. Before a student leaves for post-secondary education, they must learn to manage these medical conditions. Learning to manage these conditions is important, not...
PageBot for Kindle 2
The PageBot for Kindle 2 is a switch interface for the Amazon Kindle 2 electronic book reader designed for use by individuals with neurological disabilities, spinal cord injury, amyotrophic lateral sclerosis (ALS), cerebral palsy, muscular dystrophy,...
Pre-Deployment Insomnia Symptoms Confer PTSD Risk Similar to Combat Exposure
[From Medical News Today] A new study from the Perelman School of Medicine at the University of Pennsylvania and the Naval Health Research Center has shown military service members who have trouble sleeping prior to deployments may be at greater...
Should You Disinherit Your Child with Special Needs?
Disinherit my child? How could I do that? What would people think? I don't even know where I'd begin. How, exactly, would I do that? These are some questions that may come to mind if someone suggests you disinherit your child with special needs....
The Church Doors Are Open for All: It Also Started with a Team of Young People Who Offered to Serve as Buddies, These Young People between the Ages of 12 and 17, Agreed to Shadow the Children with Special Needs during the Days They Were All on Campus
Summers in Texas are hot! The steam off the Texas highways seems to create a vapor that could give the impression of a sauna at the best health club in town. However, more than heat is happening in Texas in the summer. While children play in swimming...
The Reward Is Smiles & Laughter
On any mild summer day, many people across the country can be found outside enjoying the day on a WhisperGLIDE swing. More than a third of these swings are purchased because centers with one swing have found that they need another swing. Among other...
TRAP (the Rhythmic Arts Project): Our Events Are Spectacular in Light of the Music and Talent Who Surround Us. We Organize Fundraising Concerts at the Lobero Theatre as Well as Smaller Venues and House Concerts
A friend asked me the other day "What's a typical day like at TRAP?" Well, it's probably not what you think it is. Most folks, even the ones who understand the complexities of the program, its values and benefits, imagine we spend much of our time...
Travel Teams: While Playing on a Travel Team or Summer League Is Great, Real Improvement Only Comes with Repetition and Practice ... Game Experience Is Fine, but Game Experience Alone Will Not Be Enough. Time Must Also Be Spent Practicing the Skills Necessary to Improve
Each month as I think about what would be an interesting topic to write about, a number of things occur that make me realize that the world of youth sports is a baffling, confusing universe for all involved. A friend of mine approached me with a dilemma....
Tricare Update from the Stars & Stripes
Does Tricare really care? Anyone following recent policy changes and the meager and conflicting public statements from Tricare Management Activity, the government-run provider of military health care, may have cause to doubt. Following the policy...
Understanding Chiropractic Natural Alternative Care
"The doctor of the future will give no medicine but will interest his patients in the care of the human frame, in diet, and in the cause and prevention of disease."--Thomas A. Edison Throughout my nearly four decade-old chiropractic practice, I...
Veterans Affairs Building Up Its Telehealth Capabilities
Today, a veteran can see a specialist for post-traumatic stress disorder treatment without leaving the comfort of his home. Veterans Affairs officials wish more would. VA health leaders showed off a wide range of remote medical offerings (in...
What Genetic Testing Means for Families: A Parent's Story
My daughter Stephanie was born with end stage renal disease, which we found out the day after she was born as she was rushed to Children's Hospital of Philadelphia. Initially not expected to survive, she surprised everyone. She even beat the prognosis...
What's in a Word? It Is Evident That Labels Are Everywhere and One Does Not Understand How Debilitating a Label Can Be If There Are Negative Connotations to It, until It Happens to Them. Frankly, Children with Autism Are Children First Who Happen to Have Autistic Characteristics
Our society has a tendency to direct its attention to labels, in other words, a way to describe and identify a group of people. Individuals with special needs are subjected to labeling that involves every aspect of their life, may it be education,...
What Was Eric's Diagnosis? in October of 1998, I Found Myself in Montreal Attending the First Scientific Symposium of the Professional and Advisory Board of the Joubert Syndrome Foundation, Now Known as the Joubert Syndrome and Related Disorders Foundation
Eric was four months old when he was diagnosed with a rare genetic disorder called Joubert Syndrome. There are no words to describe the heartbreak I felt when Eric's doctor explained that Joubert Syndrome is usually a terminal condition and that he...
Who Says You Can't?
There's an unexpected beauty in the disability world. The gifts start coming at you and they tenfold override the hard parts of the job. Don't be afraid to fail. It does work. Often it is life's unexpected challenges that test our fortitude and...
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