The Exceptional Parent

Exceptional Parent is a magazine providing practical information and guidance to parents of children and young adults with disabilities and the professionals who serve them. It was founded in 1971 and is published monthly by Psy-Ed Corp.Subjects include disabilities. The editor in chief is Rick Rader.

Articles from Vol. 44, No. 8, August

A Life of Quality
I am hoping that Amelia's story will help demolish someone else's brick wall for fair and equal medical care. Because now, when someone googles "organ transplants and the disabled" like I did in 2012, Amelia's story of hope and success is the first...
A New Wave of Progress in Healthcare Is Coming
The IDD community is abuzz with enthusiasm about the new clinic model. In the short time that the lee specialty clinic has been open, multiple representatives from other states have inquired as to how this model might be reproduced in their state....
A Tribute to the Author Nancy Garden (or Really, to "Sandy & Nancy")
Sandy and Nancy always had dogs, and I discovered through them that I too loved dogs ... their house was warm; and so unannounced, I frequently appeared on their doorstep. Nancy Garden, author of the landmark young adult book, Annie on My Mind,...
Captains: The Team Captain Is the One Who, by Their Attitude and Play, Is Really Saying "Get on My Back. Let's Get This Done."
Each year, many students and parents concern themselves with the child being named or voted "captain" of their particular team. I have had a number of parents over the years express concern over voting results, the formula used, who tallied the votes,...
Decreasing Stress
Between work commitments and home life, we are bound to find ourselves stretched thinly from time to time. During especially busy or stressful times, like deployments, moves, back to school or financial strain, we can easily become overwhelmed and...
Health Coverage Options for Children with Special Health Care Needs: What Happens When They Age out of Children's Plans?
Parents may not be aware of all the choices available for insurance coverage for their children with special needs as they become young adults. Options can include continuing dependent coverage, as well as public and private insurance. It is important...
Healthy Lifestyle = Healthy Happy Children
Setting examples in your own diet and activity behavior can be the most effective way to send the message to your kids: Being healthy and happy means living healthy through eating well and staying active! We all know that obesity has grown to epidemic...
Is There a Need for Further Trials on Treatment of Acute Seizures?
Children with seizures experience a spectrum of events extending from isolated, brief seizures to status epilepticus (SE), incorporating a full range of recurrent unprovoked seizures and prolonged or acute repetitive seizures. Similarly, semiology...
Moving Out: What Young Adults Yearning for Independence Should Consider
Are you a young adult who's thinking of moving into your own place? Many young people with special needs can live on their own with varying degrees of help. When you plan ahead, it makes the transition easier--especially if your parents aren't exactly...
My Daughter Elisa: How Hyperbaric Oxygen Therapy Helped Change My Daughter's Life
My name is Giussippina Benincasa-Feingold and I am a pediatrician and a mother of five children. In 1996, I gave birth to my second child, Elisa. She was a low birth weight preemie but she was also one of the most beautiful babies I had ever seen....
No Bad Days for Bunk Wurth
These days Bunk is confined to a wheelchair, yet he possesses the kind of inner strength and an infectious smile that can help lift the spirits of a room full of people. He also has maintained complete control of his destiny. According to Alec...
NYIT/Vocational Independence Program Open House
New York Institute of Technology/ Vocational Independence Program--a nationally recognized program for serving the transition and post-secondary requirements of special needs students--announced in late July that it will be holding an open house on...
Provider Training Needs for the Care of Patients with Intellectual and Developmental Disabilities (IDD)
For those without disabilities, a visit to a primary care provider may seem like a simple activity. Walk into the exam room, step on a scale to have one's weight checked, and get onto the exam table without any problem. One would be able to clearly...
Providing Dental Care for Patients with Disabilities: With a Shortage of Special Needs Facilities, Rutgers School of Dental Medicine Clinic Serves a Vulnerable Population
Dennis Fitzpatrick had 17 cavities by the time he arrived at the Rutgers School of Dental Medicine's special care center seven years ago. Fitzpatrick, 27, who suffers from cerebral palsy, had regular checkups throughout childhood, but his dental decay...
Stay Fit & Healthy: Walking & Biking to School
Getting ready for a new school year is an exciting time for families. New school supplies, lunch boxes, backpacks and the anticipation of meeting new teachers and seeing old friends are all part of the back-to-school preparation. After a summer of...
Stopping the Invisible Injury: Parents and Coaches Need to Know When an Athlete Is Presenting Concussion Symptoms
Suffering from a concussion can occur in any sport, and at all levels of play, from little league to the major leagues. In fact, the U.S. Centers for Disease Control (CDC) estimates 1.6 million to 3.8 million concussions occur in sports and recreational...
Tears of Joy
"Mommy, tell me a story, " my seven year old with mild autism entreats me, and in the rearview mirror I see him gift me with that grin I know so well. "Ok, who will be in it?," I reply a bit tiredly, but I'm game as he hasn't asked me to recount one...
The AAN's New Position Statement on Doctors' Obligation and Sports Concussion
The American Academy of Neurology (AAN), the largest professional association of neurologists and a leading authority on sports concussion, has released a new position paper that states doctors have an ethical obligation to educate and protect athletes...
The Fork in the Road: For the Next 36 Years, until His Death, Dr. Jerome Lejeune Dedicated Himself to the Medical Care, Advocacy, and Research to Improve the Lives of Persons with Genetic Intellectual Disabilities, Their Families and Society
Editor's Note: The following talk was delivered by Dr. Joseph P. Dutkowsky at the American Academy for Developmental Medicine and Dentistry's (AADMD) Annual Education Conference held in Princeton, NJ on June 17, 2014, the same week the 2014 Special...
The Importance of Timeliness in Newborn Screening: In November 2013, the Milwaukee Journal Sentinel Published Deadly Delays, an Investigative Article Detailing Delays in Analyzing Newborn Screening Results, across the Country
Jordann Coleman wasn't expecting any surprises from her newborn son Carter. All the prenatal check-ups had been normal, the delivery easy. He wasn't the soundest sleeper, or most enthusiastic eater, but Coleman didn't read much into it. Carter was...
Too Cute: Konrad Lorenz Proposed the Notion of a "Baby Schema," a Set of Facial and Body Features That Make a Creature Appear "Cute" and Activates in Others, the Motivation to Care for It
From time to time cute things cross my desk and instinctively get my attention. Most of the "cute things" are in emails that friends and colleagues send my way in the ongoing belief that most of us need a daily "cute fix" to ground us. Recently...
What If I Die? A Few Years Ago, during My Husband's Third Deployment, Hayden Came Running Downstairs Crying, "Mom, If You and Dad Die, I Will Take Care of Broden ..."
I have often contemplated the many differences between myself and others who do not experience the complexities of raising a child with special needs. Some differences or fears are often hidden and rarely discussed in open forums due to their rawness...
Women Caring for Children with Disabilities: "Modern Health Systems Are Able to Operate Because Women Are Willing to Shoulder the Burden of Care for Their Partners, Family Members, Friends and Communities."
"The vast majority of American children with disabilities now live in family households, where care is largely women's work." (2) "The unpaid carework mothers perform restricts their access to the labor force and reinforces the devaluation of their...
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