Magazine article The Exceptional Parent

Familiar Faces

Magazine article The Exceptional Parent

Familiar Faces

Article excerpt

OWEN

Owen Walker Hayes is nine months old in this picture. He was diagnosed with Urticaria Pigmentosa at three months of age. This skin disorder is caused by too much histamine in the system. Owen likes to play with his cousins and his dog, Cleo. In this photo, Owen is hanging onto one of Cleo's toys.

ALEXANDRA

Alexandra Maniscalco, 12 years old, was born with 7/9 Chromosome Translocation. She has a G-Tube Trach and a severe seizure disorder. She receives twenty-four-hour nursing and PT, OT, ST as well as a Special Ed. teacher five days a week in her home. Alexandra is a happy and loveable girl who brings joy to everyone she meets. She loves spending time on the weekend with her baby sister, Lily Rose.

ALEC

Alec Daniel Everitt, three, has Lowe Syndrome. This affects the eyes (cataracts), brain and kidneys, as well as causing low muscle tone. …

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