Magazine article The Exceptional Parent

Remembering Daniel

Magazine article The Exceptional Parent

Remembering Daniel

Article excerpt

Ionce had a brother. His name was Daniel Jordan Reiff. He died at age five and a half. He had pyruvate dehydrogenase deficiency. He was my absolute best friend.

When Daniel was two years old, he could say 50 words. Then, he got sick and lost all his words except for "Naa Naa" (his name for me), "Mama" and "Daddy." He crawled a lot--so much that my little sister called him a "crawl boy." I loved him a lot, even though he had a disability. Sometimes, I felt lonely because none of my friends had brothers like Daniel. He was really, really hard to take care of and it took a lot of time, but I still loved him.

After school one day, when Daniel was in the hospital with mononucleosis, my friend's mom came and took me to the hospital. Then, my mom told me to say good-bye to Daniel because he wasn't going to make it through this hospital stay. I said good-bye and I kissed him. At 7:20 p.m., on May 3, 1993, he died. I knew this was going to happen, but I was not ready for it. …

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