Magazine article The Exceptional Parent

Learning What Families and Physicians Share

Magazine article The Exceptional Parent

Learning What Families and Physicians Share

Article excerpt

Families know what they want and what they need. Regardless of ethnicity or culture, most families report they are satisfied when they feel they've been heard. They are satisfied when their concerns and ideas are valued and acted upon.

C3ID researchers are also interested in what physicians say and know about the impact of culture and ethnicity on the health of children with chronic illness and disabilities and their families. The physicians for each family involved in the project will be interviewed and will provide additional input.

A set of questions that would be appropriate for physicians was selected from the family interviews. The goal is to get at how physicians understand the family with a chronically il] child, their culture, support system and general coping process. Researchers will then compare the family and physician's points of view.

When we analyze the data, we are looking for recommendations that families and physicians have for improving care for children with chronic conditions from diverse cultural backgrounds.

"When we practiced the interview questions with physicians," Garwick says, "they felt the questions were clear and relevant." The questions themselves raise the physician's awareness of family and cultural issues. …

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