Magazine article The Exceptional Parent

"We Move" - Increasing Awareness of Movement Disorders

Magazine article The Exceptional Parent

"We Move" - Increasing Awareness of Movement Disorders

Article excerpt

WE MOVE (Worldwide Education and Awareness for Movement Disorders) is a non-profit organization whose primary mission is to increase awareness of movement disorders among healthcare professionals and the public. WE MOVE develops and distributes information, sponsors educational courses, and promotes patient advocate organizations. Since its inception in 1991, WE MOVE has worked hard to meet these needs and has received the endorsement of the Movement Disorder Society (MDS), an international association of doctors interested in movement disorders.

Information source

"Our goal was to form a unique organization that would address the pressing need to educate neurologists about movement disorders, inform patients of new treatments, and to let both patients and doctors know about the support organizations," states WE MOVE's Medical Director, Dr. Mitchell Brin.

Over the last seven years, WE MOVE has developed and distributed audio-visual teaching materials to help physicians educate other healthcare professionals and patients about movement disorders. These materials include comprehensive slidesets on Parkinson's disease, dystonia, tremor, Huntington's disease, myoclonus, tics and Tourette syndrome, and spasticity. To assist physicians in their clinical practices, WE MOVE produces and distributes a Movement Disorder Portfolio. The portfolio consists of standardized rating scales (including the Unified Parkinson's Disease Rating Scale), and data forms that support the patient examination and recording procedure with the aim of increasing the quality of patient care and medical record keeping.

"Because WE MOVE and the Movement Disorder Society share complementary goals, the leaders of both organizations work together closely in creating new projects important to both groups," Dr. Brin explains. "This year, for instance, WE MOVE and the Society are producing a shared meeting display that they will use to promote both groups at, conferences around the world." WE MOVE established Web sites for the Society and their journal, Movement Disorders, and will continue to develop and update them. The Society site, (www.movementdisorders.org), announces the benefits of membership, features a downloadable application, and promotes a Society-sponsored symposia and the biennial Congress. The journal site (www.mssm.edu/movejrnl) features the table of contents for the current and upcoming issue, instructions for authors, and a frequently updated listing of articles accepted for publication.

"We hope that these two sites assist the Society in meeting its membership goals and at the same time meet the needs of its current members," comments Ms. Judith Blazer, WE MOVE's executive director, "We also coordinate the `Announcements' section that appears in the journal. If any Society member would like to publicize a symposium or conference, or announce a grant opportunity, send the information directly to WE MOVE it will appear in the journal as well as on the Web site."

Advocacy efforts and support

As a patient advocate, WE MOVE promotes support organizations in a myriad of ways. "WE MOVE recognizes the important role the patient advocate organizations play in providing crucial information and emotional support to patients and their families," Ms. Blazer notes. "We promote these organizations in all possible ways-including via the World Wide Web and in our publication, the International Guide to Patterer Support Organizations. To date, we have distributed over 12,000 copies of this unique resource to healthcare professionals and patients around the world. …

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