Magazine article The Exceptional Parent

Truly Exceptional Parents

Magazine article The Exceptional Parent

Truly Exceptional Parents

Article excerpt

Being a parent can be exhausting, frustrating, scary, and emotionally draining. People deal with the struggles and tribulations of parenting daily in every country using every language day and night. They write books about how to do it. There are television talk shows that dedicate episode after episode with experts from all over the world telling us what type of parents we need to be. And the majority of these books and experts are written for parents dealing with "normal" children ...

Here at www.brightbeacon.org and EP we hear from parents all of the time that are going through the same struggles ... multiplied by ten. Parents of children with disabilities and chronic medical need are exceptional. The mental fortitude and ability to find hope and joy amidst a myriad of troubles and obstacles is the hallmark of these exceptional parents' lives. They cry. They get angry. But in the end, they love their children and see the potential and unlimited possibilities in their lives that others overlook daily. Below you can see some recent posts from two parents on ww.brightbeacon.org. You can see the emotions these parents go through, yet they stand firm for their children and are there for them even when the world seems to ignore or marginalize their needs.

User 1:

"My daughter is having problems getting approved for student disabilities accommodations at her private Catholic university. She came home from the graduation ceremony this last weekend in tears talking about how the commencement included a man getting on stage and telling the crowd about how helpful and supportive the school was with assisting students with disability needs. While my daughter was sitting in the crowd watching her fellow students graduate, she began the program with, instead of sitting alongside of them, waiting on her turn to walk the stage like a proud Texan. She sat with parents and friends in disappointment thinking about how she had spent the entire year being delayed, ignored and denied each time she asked for disabilities accommodations and assistance from faculty and staff. Now she is behind an entire year, and I think that she goes to a horrible university where the dean's decisions to make her repeat classes that she really passed with flying colors stands reinforced. She was not allowed to receive credit for late coursework that she submitted, which she could not complete on time, due to severe illness that she provided them documentation of, but I think that all they really want is money. I think that's so selfish. Everybody has just been ignoring her and telling her that she should have been able to finish her work. I am infuriated watching her depression worsen, which has been greatly concerning me since the time of her father's suicide. I am really concerned, and it seems as though all the school cares about is money instead of helping her. They have been quite insensitive. If anyone out there can help that works in the field of higher education or can just offer a bit of encouragement, please e-mail me."

User 2:

"There are moments when the pressure, fear, frustration and anxiety of being a parent become so overwhelming and so daunting that a meltdown, at some point, is inevitable. That is how I felt last Friday. I came home from work, threw myself on the sofa, I put my head in my hands and cried - loudly. …

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