Magazine article The Exceptional Parent

Celebrating the Upside

Magazine article The Exceptional Parent

Celebrating the Upside

Article excerpt

In March, parents of a four-year-old Oregon girl who has Down syndrome were awarded nearly $3 million in a lawsuit against the hospital where prenatal testing showed the baby did not have Down syndrome. After the infant was diagnosed at birth with Down syndrome, the parents sued the hospital, claiming they would have terminated the pregnancy if they had known.

This is not just a story of medical misdiagnosis, says Dr. Julia Kinder, a Missouri physician and mom to seven-year-old Ella, who has Down syndrome. "Thousands of parents each year face the decision to keep or terminate their pregnancy based on a prenatal diagnosis of Down syndrome, says Kinder. "And parents are often making that decision based on widespread misconceptions and misinformation."

"Down syndrome is not a disease, like cancer, and should no longer be approached as such. Screening for Down syndrome should be done for the purpose of allowing time for parents and physicians to prepare for the birth of a baby who may need extra care," she says. …

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