Magazine article The Exceptional Parent

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Magazine article The Exceptional Parent

Respond

Article excerpt

Looking for cases of septo-optic dysplasia

K.B. and J.B., Las Vegas, Nevada (September 1998), have a son who was diagnosed with septo-optic dysplasia when he was 3 weeks old. He went through three surgeries and transfusions, and he had a close call with peritonitis (an inflammation of the peritoneum, which is a smooth membrane that lines the abdominal cavity and consists of two layers). K.B. and J.B. are interested in hearing from any parents of children who have gone through the same experiences as their son.

My 3-year-old son T. J. was also born with septo-optic dysplasia. He has significant visual impairment, hypothyroidism, and considerable developmental delays. He was also born with reflux which caused him numerous problems in his first year. These problems included: excessive weight loss--resulting in hospitalization--and choking on the vomit caused by the reflux. His first year also brought frequent upper-respiratory problems; he was hospitalized for respiratory syncytial virus (RSV) and rotavirus (a group of viruses which are highly contagious and include excessive diarrhea, vomiting, and dehydration).

We have not had any problems these past 2 years, but in the past few months, T. J. has had frequent nosebleeds. We are not sure if they are a result of the dry air or if it is something more serious. I hope I was of some help to you, and I wish you and your family the best of luck in your search.

J.B., Arnold, Pennsylvania

Down syndrome and alopecia areata

M.P., Richmond Hill, New York (December 1998), has a 7-year-old girl who has Down syndrome and developed alopecia areata (hair loss which is secondary to a variety of conditions). …

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