Magazine article The Exceptional Parent

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Magazine article The Exceptional Parent

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Learning disability, epilepsy, and reflex sympathetic dystrophy

My son has learning disabilities (dyslexia) as well as epilepsy. He has recently been diagnosed with reflex sympathetic dystrophy. (RSDS is characterized by burning pain in one or more of the extremities. It is easily misdiagnosed as just a painful nerve injury.) There is not much information available, and I am wondering if anyone has a child with this condition, what they know about it, and what has been done for their child. I am especially interested in finding out if there is a relationship between epilepsy and reflex sympathetic dystrophy.

R.A., Brooklyn, NY

EDITOR'S NOTE: For information on RSDS, please contact the following:

Reflex Sympathetic Dystrophy
Association of America
116 Haddon Ave., Ste. D
Haddonfield, NJ 08033
E-mail: jwbroatch@aol.com
Web site:www.rsds.org

Congenital mirror movements

My daughter has congenital mirror movements (sometimes called inherited mirror movements). She has it in her hands and feet. It causes her hands to mirror each other (e.g. when picking up a cheerio, both her hands "pinch" or "grasp" as if she were picking up something with both hands at the same time). She has developmental delays and also has hyptonia of the trunk. She is 11-months-old and is just learning to "belly crawl." I am looking for anyone who has knowledge of this disorder. I cannot find any information, and her neurologist has seen it only one other time in 20 years.

D.J., E-mail

Thoracic spinal cord stenosis

We have a bright, happy 4-year-old daughter who was diagnosed with thoracic spinal chord stenosis. From what I understand, this is not related to spina bifida. She wears braces and uses crutches at times, has limited function in her lower extremities and an unsteady gait that causes her to walk poorly and fall a lot. …

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