Newspaper article Evening Gazette (Middlesbrough, England)

Meet Erin.She's Always Smiling and Loves to Chat in Her Own Special Way; but She Has a Condition So Rare That Doctors Have Named It after Her: By JOANNA DESIRA Joanna.Desira@eveninggazette.Co.UK

Newspaper article Evening Gazette (Middlesbrough, England)

Meet Erin.She's Always Smiling and Loves to Chat in Her Own Special Way; but She Has a Condition So Rare That Doctors Have Named It after Her: By JOANNA DESIRA Joanna.Desira@eveninggazette.Co.UK

Article excerpt

BRAVE Erin Bishop suffers a condition so rare doctors have named it after her.

The disorder affecting the 12-year-old has never been medically recorded. So doctors at James Cook University Hospital, in Middlesbrough, called it Erin's Syndrome.

When Erin was born it became clear she would have difficulties eating, speaking and walking.

Her family said she displays characteristics in common with the rare genetic disorder Costello's Syndrome. These include distinctive facial features, curly hair and an engaging personality. Until recently she had to be fed through a tube.

But she is also unable to walk or talk. According to her family, doctors say she has a chromosome missing.

Now Erin, who lives with gran Pamela in Grove Hill, is making progress. She can eat and has received an award from Priory Woods School for taking her first seven steps. Erin is well known in her neighbourhood, where people often stop to say hello.

Her proud aunt Natalie has nominated her in the Evening Gazette's Community Champions Awards as Child of Courage, sponsored by Northumbrian Water.

Gran Pamela said: "She is a very rare case because she can't walk or talk so the doctors have called it Erin's Syndrome. …

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