Newspaper article Evening Chronicle (Newcastle, England)

I'm Pending for Our Bou Ollie; Dad's Marathon Ride Will Raise Cash for Wheelchair

Newspaper article Evening Chronicle (Newcastle, England)

I'm Pending for Our Bou Ollie; Dad's Marathon Ride Will Raise Cash for Wheelchair

Article excerpt

Byline: BRAIN DANIEL

LITTLE Ollie Crawshaw should be enjoying playing with friends at the park, climbing at a soft play area, and taking to the beach with his parents.

But the two-year-old is unable to do any of these things due to a rare condition which means he will never be able to walk or stand up unaided.

Ollie has Spinal Muscular Atrophy, a disease which has effected the muscles in his lower body and left the toddler only able to crawl.

He is reliant on his parents Nic and Rob carrying him, and uses a manual wheelchair as well as a metal frame which supports his knees and allows him to stand up.

The condition is passed on by a child's parents and Ollie inherited a faulty gene from both Nic and Rob, despite only one in 40 people having them.

There was still a one in four chance the youngster, who lives with his parents close to the beach at Holly Avenue in Whitley Bay, would only be a carrier like his mum and dad, but that was not the case.

Nic and Rob, who knew nothing of the disease, had taken him to specialists and a paediatrician when he was around 18 months as they were concerned that he had began showing signs of looking to walk, only to then seemingly regress.

The Crawshaws were told there was nothing seriously wrong. However, as time passed and Ollie still showed little sign of improvement, he was taken for more tests. The youngster was diagnosed the day after he turned two last June.

The couple were told he would never walk and that as a degenerative condition, their son would only get worse. However, it is not known whether the disease will effect his upper body in later life.

Nic, 37, an animal health inspector at Northumberland County Council, said: "The worst time was the six months waiting to get the final diagnosis. We were just left waiting and wondering what was wrong and then when we got the diagnosis, it was horrific really. …

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