Newspaper article Sunshine Coast Sunday (Maroochydore, Australia)

Motoring for Charity; Sarah Rex Reports That Next Sunday's Kin Kin Kampout Will Raise Funds for Cystic Fibrosis Sufferers on the Coast

Newspaper article Sunshine Coast Sunday (Maroochydore, Australia)

Motoring for Charity; Sarah Rex Reports That Next Sunday's Kin Kin Kampout Will Raise Funds for Cystic Fibrosis Sufferers on the Coast

Article excerpt

Cystic Fibrosis is the most common life-threatening genetic condition to young Australian children, with more than 2000 Australian babies being born with the condition each year.

The condition is due to a recessive gene, which means both parents must have the gene present for their child to contract the disease. CF attacks the movement of salt in and out of our body cells, and can result in the lungs and pancreas being congested with thick mucus.

Other symptoms of CF include poor weight gain, chest infections, and a wet cough.

Source: cysticfibrosis.org.au/aboutcf/

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ERYN Wagner-Jordan is a typical 15-year-old.

She goes to school and studies hard. She enjoys going on school camps and spending time with her friends and family.

The one thing that separates her from the crowd is the fact she suffers from the life-threatening disease Cystic Fibrosis (CF).

Every day, Eryn endures physiotherapy and uses two nebulisers to clear mucus and fluid build-up from her body.

Eryn's grandmother Patricia Wagner is an active member of the Sunshine Coast Cystic Fibrosis Support Group and works hard to help other families of Cystic Fibrosis sufferers.

aI've been doing it about eight years,a Patricia said.

aI organise a coffee morning once a month and send out newsletters to members in case they can't come to meetings.

aBecause Cystic Fibrosis means there is a high risk of cross infection, some people don't always make it to meetings, especially if there are a lot of bad colds going around.a

Patricia said the support group relied heavily on donations collected on their behalf by the Glasshouse Mountains Rotary Club.

aAbout 15 years ago, there was a lady who lost her daughter to CF,a she said.

aShe moved to the Sunshine Coast and went to a Rotary dinner and told them her story. They were so moved by it that they decided to do something to help any family on the Sunshine Coast effected by CF. …

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