Newspaper article Daily News (Warwick, Australia)

Mum in Fight for Her Daughter's Life Treatment Is out of Reach for Tracey

Newspaper article Daily News (Warwick, Australia)

Mum in Fight for Her Daughter's Life Treatment Is out of Reach for Tracey

Article excerpt

Kirstin Payne

Reporter

ALLORA woman Lee Young is crossing Queensland to fight for her daughter's right to a life.

Mrs Young is on a mission to have her daughter's case considered for funding by the Independent Pharmaceutical Benefits Advisory Committee.

Sick of watching her daughter, Roma police officer Tracey Warren, suffer, Mrs Young has taken to the streets of south-east Queensland urging people to take action.

Mrs Warren suffers from an extremely rare disease called Atypical hemolytic-uremic syndrome (or aHUS).

It is a blood disease produced within the liver, which can lead to life-threatening progressive damage to vital organs including the kidneys, heart and brain, and often ends in death.

Doctors could not understand what was wrong with Mrs Warren when her symptoms flared in 2012.

She swelled from 52kg to 74kg in only two days.

Flaring three times since diagnosis, Mrs Warren had spent months being pumped with plasma daily.

She now must travel weekly to the Brisbane Mater Hospital to receive life-saving plasmapheresis.

However there is an easier option, but it comes at a price.

Once named by Forbes Magazine as the most expensive drug in the world, Soliris (Eculizumab) is the only drug required to "switch off" the disease.

Costing $500,000 a year, Soliris would allow Mrs Warren to be treated fortnightly at her local hospital instead of having to travel to Brisbane weekly.

Mrs Young, who moved from Goondiwindi to Allora last year in order to be closer to her daughter, wants to collect 40,000 signatures by February 21 in order for the funding to be considered by the Senate.

"I just feel like the government doesn't care and they prefer to be spending their money on pay rises," Mrs Young said.

Bags of plasma cost about $1000 each.

Mrs Warren uses 11 weekly. …

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