Newspaper article The Florida Times Union

Gene Therapy Helps Local Foundation

Newspaper article The Florida Times Union

Gene Therapy Helps Local Foundation

Article excerpt

Byline: Cindy Holifield

One little boy, who was granted just 15 years on this earth, touched a lot of people for the good.

Joshua Frase was born with myotubular myopathy (MTM), a rare genetic mutation of the MTM1 gene that makes it difficult for, primarily males, to crawl, walk and breathe on their own. His parents, Paul Frase, a former NFL defensive lineman for the Jacksonville Jaguars, and wife, Alison Rockett Frase, founded the Joshua Frase Foundation when Joshua was born with the disease.

Typically 70 percent of children born with MTM never celebrate their second birthday.

"My son Joshua's Journey was a struggle between life and death," said Rockett Frase. "His perseverance and character gave us guarded hope that he would live and not die. He inspired us to raise awareness and forge a path to find a cure for him and his peers."

The foundation's research is moving toward several clinical trials and has prompted Wayne and Dolores Barr Weaver, former owners of the Jaguars, to give The Joshua Frase Foundation a $50,000 grant. Money from The Weaver Foundation, fused with the Community Foundation which provides grants to nonprofits, is to be used in the upcoming clinical trials.

The foundation's efforts support research initiatives and several clinical trial programs using gene therapy to pave the way for curative treatment for other neuromuscular disorders.

To find out more about The Joshua Frase Foundation, or to donate, go to joshuafrase.org.

Here's more good news:

- Jason Matthew Voshell, 16, has achieved Scouting's highest honor and achieved the rank of Eagle Scout on Jan. 20. He is a member of Troop 304 at Sacred Heart Catholic Church. For his Eagle project, he set up a water catch system for Somer's Garden on Gano Boulevard in Orange Park. Jason, a junior at Orange Park High School, is the son of Tina Warren of Orange Park and Joshua Voshell of the Westside.

- James Kenneth Moore of Callahan, has had his poetry entry accepted for publication in the National High School Poetry Contest. …

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