Families and Their Children with Down's Syndrome: One Feature in Common

By Elizabeth A. Byrne; Cliff C. Cunningham et al. | Go to book overview

2

The Manchester Down’s Syndrome Cohort Study

The white paper entitled ‘Better services for the mentally handicapped’ (DHSS, 1971) stated as a general principle that: ‘Each handicapped person should live with his own family as long as this does not impose an undue burden on them or him, and he and his family should receive full advice and support.’ Sixteen years later, the advice and support that families require has not yet been satisfactorily clarified. In ‘Mental handicap: progress, problems and priorities’ (DHSS, 1980) it was concluded that further work was required on ‘the roles of the various professionals who provide services to families of mentally handicapped children’, on ‘service policy’ and on ‘how services to families can best be co-ordinated’.

Although such desires are commonly expressed, there is insufficient information available about what the needs of families of children with learning difficulties are. Indeed, many such reports and advisory documents appear to stereotype families of children with learning difficulties and assume that they all have similar needs and that we know what those needs are and can meet them.

It was this realisation that led us to the research described in this book. We had been engaged in research on early development, family support and intervention with a cohort of 181 families who each had a child with Down’s syndrome born in Greater Manchester between August 1973 and August 1980 (The Manchester Down’s Syndrome Cohort). During our many discussions with the parents, a large number of issues began to emerge. Some families appeared to be experiencing difficulties, describing relationship problems, difficulties with the children and feelings of restriction and isolation. Others spoke of their concerns about the services they received, or about the reactions of others to themselves and

-9-

Notes for this page

Add a new note
If you are trying to select text to create highlights or citations, remember that you must now click or tap on the first word, and then click or tap on the last word.
One moment ...
Default project is now your active project.
Project items

Items saved from this book

This book has been saved
Highlights (0)
Some of your highlights are legacy items.

Highlights saved before July 30, 2012 will not be displayed on their respective source pages.

You can easily re-create the highlights by opening the book page or article, selecting the text, and clicking “Highlight.”

Citations (0)
Some of your citations are legacy items.

Any citation created before July 30, 2012 will labeled as a “Cited page.” New citations will be saved as cited passages, pages or articles.

We also added the ability to view new citations from your projects or the book or article where you created them.

Notes (0)
Bookmarks (0)

You have no saved items from this book

Project items include:
  • Saved book/article
  • Highlights
  • Quotes/citations
  • Notes
  • Bookmarks
Notes
Cite this page

Cited page

Style
Citations are available only to our active members.
Buy instant access to cite pages or passages in MLA, APA and Chicago citation styles.

(Einhorn, 1992, p. 25)

(Einhorn 25)

1. Lois J. Einhorn, Abraham Lincoln, the Orator: Penetrating the Lincoln Legend (Westport, CT: Greenwood Press, 1992), 25, http://www.questia.com/read/27419298.

Cited page

Bookmark this page
Families and Their Children with Down's Syndrome: One Feature in Common
Table of contents

Table of contents

Settings

Settings

Typeface
Text size Smaller Larger Reset View mode
Search within

Search within this book

Look up

Look up a word

  • Dictionary
  • Thesaurus
Please submit a word or phrase above.
Print this page

Print this page

Why can't I print more than one page at a time?

Help
Full screen
/ 160

matching results for page

    Questia reader help

    How to highlight and cite specific passages

    1. Click or tap the first word you want to select.
    2. Click or tap the last word you want to select, and you’ll see everything in between get selected.
    3. You’ll then get a menu of options like creating a highlight or a citation from that passage of text.

    OK, got it!

    Cited passage

    Style
    Citations are available only to our active members.
    Buy instant access to cite pages or passages in MLA, APA and Chicago citation styles.

    "Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences." (Einhorn, 1992, p. 25).

    "Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences." (Einhorn 25)

    "Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences."1

    1. Lois J. Einhorn, Abraham Lincoln, the Orator: Penetrating the Lincoln Legend (Westport, CT: Greenwood Press, 1992), 25, http://www.questia.com/read/27419298.

    Cited passage

    Thanks for trying Questia!

    Please continue trying out our research tools, but please note, full functionality is available only to our active members.

    Your work will be lost once you leave this Web page.

    Buy instant access to save your work.

    Already a member? Log in now.

    Oops!

    An unknown error has occurred. Please click the button below to reload the page. If the problem persists, please try again in a little while.