Caring for Children with Neurodevelopmental Disabilities and Their Families: An Innovative Approach to Interdisciplinary Practice

By Claudia María Vargas; Patricia Ann Prelock | Go to book overview

8
Parent to Parent Practicum
to Learn About the Family Perspective:
Down Syndrome and Celiac Disease
Jo Yoder
Sara Burchard
Parent to Parent of Vermont
University of Vermont

Questions to Consider
1. What can students learn about a child and family while meeting them in their home versus engaging with them in a clinical situation?
2. Why is it important for the family to set the agenda for student interactions in their home and community?
3. How can students apply to their daily, professional practice what they learn through personal connections with families?

NICOLE'S STORY

When Nicole1 was born nine years ago her parents, Tina and Scott, and 3year-old brother, Mark, were excited about the prospect of a baby girl in their family. Their excitement was coupled with the age-old parental concerns about health, adjustment, and a new baby's future. Would she feed well? Would she develop an easy sleep pattern? How would her brother get along with her after the initial excitement wore off? How long would it take for the family to adjust as a foursome? Would the fact that Nicole has Down syndrome influence family patterns and schedules?

____________________
1
All family names have been changed to protect confidentiality.

-245-

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