A Challenge to Medico-Legal Norms
The phenomenon of the New Genetics raises complex social problems, particularlythose relating to privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state.
Graeme Laurie provides a unique definition of privacy, including a concept of propertyrights in the person, and argues for stronger legal protection of privacyin the shadow of developments in human genetics. He challenges the role and the limits of established principles in medical law and ethics, including respect for patient autonomyand confidentiality.
This book will interest lawyers, philosophers and doctors concerned with both genetic information and issues of privacy; it will also be of interest to genetic counsellors, researchers and policymakers worldwide for its practical stance on dilemmas in modern genetic medicine.
GRAEME LAURIE is senior lecturer in law at the Universityof Edinburgh. His research interests include the role of the law in promoting and protecting science, medicine and technology. He is a co-director of the Arts and Humanities Research Board Centre for Studies in Intellectual Propertyand TechnologyLaw – and has acted as an adviser and rapporteur on genetic databases to the World Health Organisation.