Human genetics and genetic privacy
Good ethics and good law begin with good facts.1 This chapter therefore considers the current state of knowledge about human genetics and outlines the available options for its possible uses. The claims of persons and institutions with an interest in genetic information are examined and the potential conflicts explained. This is a crucial precursor to any discussion about the appropriate responses that ethics and law should have to anyadvances in genetic science and medicine.
The idea of the Human Genome Project was endorsed bythe US National Research Council in 1988,2 and an internationallycoordinated effort was under waybylate 1990 with the aim of mapping and sequencing the entire chain of human DNA:3 the human genome.4 A double helical string of DNA is contained in the nucleus of everycell in every human being, except the gametes. DNA dictates the nature and function of all such cells,5 and for this reason the human genome has been____________________