If That Ever Happens to Me: Making Life and Death Decisions after Terri Schiavo

By Lois Shepherd | Go to book overview

NOTES

INTRODUCTION

1. Smith, “Legacy of Terri Schiavo.”

2. As with the other major topics introduced in this chapter, this point is explored more fully later (see chapter 5) with sources cited to support the more developed text.

3. Dresser, “Schiavo's Legacy,” 20.

4. “Poll: Keep Feeding Tube Out.”

5. ADA Watch et al., “Issues Surrounding Terri Schindler-Schiavo.”

6. Shepherd, “In Respect of People.”


CHAPTER 1

1. Jennett and Plum, “Persistent Vegetative State.”

2. Schiff and Fins, “Hope for 'Comatose' Patients.”

3. Ibid.

4. Jennett, Vegetative State, 4–5.

5. American Academy of Neurology, “Practice Parameters,” 1015.

6. Berube et al., Mohonk Report, 10.

7. Fins, Schiff, and Foley, “Late Recovery.”

8. Fins, “Rethinking Disorders of Consciousness”; Schiff and Fins, “Hope for 'Comatose' Patients.”

9. Groopman, “Silent Minds.”

10. Fins, “Minimally Conscious State,” 2; see also Fins et al., “Minimally Conscious State.”

11. Fins, “Minimally Conscious State,” 2.

12. Ibid.

13. Schindler and Schindler, Life That Matters, 40.

14. Schiff and Fins, “Hope for 'Comatose' Patients.”

15. Fins, “Border Zones of Consciousness,” 53.

16. Fritz, “Last Rights.”

17 The Uniform Determination of Death Act, adopted in most states, provides that “[a]n individual who has sustained either (1) irreversible cessation of circulatory and respiratory functions, or (2) irreversible cessation of all functions of the entire brain, including the brain stem,

-193-

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If That Ever Happens to Me: Making Life and Death Decisions after Terri Schiavo
Table of contents

Table of contents

  • Title Page iii
  • Contents vii
  • Acknowledgments ix
  • Introduction 1
  • 1: Disorders of Consciousness and the Permanent Vegetative State 15
  • 2: Legal and Political Wrangling Over Terri's Life 35
  • 3: In Context— Law and Ethics 57
  • 4: Terri's Wishes 77
  • 5: The Limits of Evidence 96
  • 6: The Implications of Surrogacy 112
  • 7: Qualities of Life 128
  • 8: Feeding 143
  • 9: The Preservation of Life 162
  • 10: Respect and Care an Alternative Framework 173
  • Appendix - The National Right to Life Committee's Model Starvation and Dehydration of Persons with Disabilities Prevention Act 189
  • Notes 193
  • Bibliography 201
  • Index 215
  • Studies in Social Medicine 223
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