The Perspectives of People with Dementia: Research Methods and Motivations

By Heather Wilkinson | Go to book overview

Chapter Three

Ethical issues in dementia care research

Helen Bartlett and Wendy Martin


Introduction

Research into the health and social aspects of dementia is increasing as the number of people with dementia in the UK continues to rise. As the predominant medical discourses that previously surrounded a person with dementia have been challenged (Bond and Corner 2001), the focus of research now increasingly aims to promote an understanding of how people with dementia construct their social worlds, and participants are viewed as active participants in the research process (Clarke 1999; Crossan and McColgan 1999). Goldsmith (1996) argues about the importance of hearing the 'voice' of the person with dementia and research now increasingly aims to understand their subjective experiences. Whilst this important change is welcomed it has, at the same time, raised new ethical and methodological dilemmas for researchers in dementia care. These issues have been addressed in relation to clinical research (see Agarwal et al. 1996; Baskin et al. 1998; Berghmans 1998; Berghmans and Ter Meulen 1995; High 1993;) and researchers are now starting to explore the ethical dilemmas associated with social research (Adams and Clarke 1999; Clarke and Keady 1996; Crossan and McColgan 1999; Downs 1997; Kayser-Jones and Koenig 1994; Stalker, Duckett and Downs 1999; Stalker, Gilliard and Downs 1999).

This chapter sets out to explore the key ethical issues in dementia research, drawing on lessons from a study about empowering older people with dementia.1 It will set out the approaches adopted in relation to these

-47-

Notes for this page

Add a new note
If you are trying to select text to create highlights or citations, remember that you must now click or tap on the first word, and then click or tap on the last word.
One moment ...
Default project is now your active project.
Project items

Items saved from this book

This book has been saved
Highlights (0)
Some of your highlights are legacy items.

Highlights saved before July 30, 2012 will not be displayed on their respective source pages.

You can easily re-create the highlights by opening the book page or article, selecting the text, and clicking “Highlight.”

Citations (0)
Some of your citations are legacy items.

Any citation created before July 30, 2012 will labeled as a “Cited page.” New citations will be saved as cited passages, pages or articles.

We also added the ability to view new citations from your projects or the book or article where you created them.

Notes (0)
Bookmarks (0)

You have no saved items from this book

Project items include:
  • Saved book/article
  • Highlights
  • Quotes/citations
  • Notes
  • Bookmarks
Notes
Cite this page

Cited page

Style
Citations are available only to our active members.
Buy instant access to cite pages or passages in MLA, APA and Chicago citation styles.

(Einhorn, 1992, p. 25)

(Einhorn 25)

1. Lois J. Einhorn, Abraham Lincoln, the Orator: Penetrating the Lincoln Legend (Westport, CT: Greenwood Press, 1992), 25, http://www.questia.com/read/27419298.

Cited page

Bookmark this page
The Perspectives of People with Dementia: Research Methods and Motivations
Table of contents

Table of contents

Settings

Settings

Typeface
Text size Smaller Larger Reset View mode
Search within

Search within this book

Look up

Look up a word

  • Dictionary
  • Thesaurus
Please submit a word or phrase above.
Print this page

Print this page

Why can't I print more than one page at a time?

Help
Full screen
/ 256

matching results for page

    Questia reader help

    How to highlight and cite specific passages

    1. Click or tap the first word you want to select.
    2. Click or tap the last word you want to select, and you’ll see everything in between get selected.
    3. You’ll then get a menu of options like creating a highlight or a citation from that passage of text.

    OK, got it!

    Cited passage

    Style
    Citations are available only to our active members.
    Buy instant access to cite pages or passages in MLA, APA and Chicago citation styles.

    "Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences." (Einhorn, 1992, p. 25).

    "Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences." (Einhorn 25)

    "Portraying himself as an honest, ordinary person helped Lincoln identify with his audiences."1

    1. Lois J. Einhorn, Abraham Lincoln, the Orator: Penetrating the Lincoln Legend (Westport, CT: Greenwood Press, 1992), 25, http://www.questia.com/read/27419298.

    Cited passage

    Thanks for trying Questia!

    Please continue trying out our research tools, but please note, full functionality is available only to our active members.

    Your work will be lost once you leave this Web page.

    Buy instant access to save your work.

    Already a member? Log in now.

    Author Advanced search

    Oops!

    An unknown error has occurred. Please click the button below to reload the page. If the problem persists, please try again in a little while.