It's not Just Growing Pains: A Guide to Childhood Muscle, Bone, and Joint Pain, Rheumatic Diseases, and the Latest Treatments

By Thomas J. A. Lehman | Go to book overview

Appendix:
Resources

There are thousands of organizations, Internet sites, books, and similar resources for families of children with musculoskeletal diseases and other problems. There is no way I could list all of them here. I have listed the major organizations and others with which I have worked. I’m sure this list is incomplete. Many of these organizations have a Web page that may direct you to many others. I have also listed some Internet-based groups that provide support for children with chronic illness and their parents. But be careful: some of the information on the Internet is excellent, but much of it is not reliable.

My own Web page is the pediatric rheumatology home page: http:// www.goldscout.com.

There is more information in this book than I can put there, but I regularly update that site with the latest information.


Organizations Dedicated to Helping Children
with Musculoskeletal Diseases

Organizations Without a Specific Disease Focus

National Institute of Arthritis and Musculoskeletal and Skin Diseases (301) 495–4484 or (877) 22-NIAMS (toll free) Information Clearinghouse National Institutes of Health 1 AMS Circle Bethesda, MD 20892–3675 http://www.niams.nih.gov

-389-

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