I consulted the Bruno Bettelheim Papers at the Special Collections Research Center, University of Chicago Library; and the Amy L. Lettick Papers at the Manuscripts and Archives Collection, Sterling Memorial Library, Yale University.
In order to provide ease of access to readers, in the notes to this book I have included full citations to both archival sources and published primary sources that I cite a single time. The notes also contain short references to secondary sources. These sources are listed in the bibliography. Readers interested in finding a general guide to secondary literatures (e.g., in the social sciences) can consult the bibliography.
1. Rose (1983, 83).
2. Haraway (1997a, 124).
3. Slogan on a T-shirt, CafePress, http://www.cafepress.com/buy/autism/-/ pv_design_details/pg_4/id_9298831/opt_/fpt_/c_36o/.
4. It can also refer to a type of person (e.g., “autistic child”) or a syndrome that a person has (“child with autism”). Throughout this book, I observe the convention of “person-first” language advocated by the disability rights movement when referring to children with autism in the present, but I use the terminology appropriate to any given historical period when describing children in that period. In keeping with the preference of most self-advocates in the present, I do not use person-first language when referring to them.
5. There is a growing body of anthropological scholarship that does focus on informal practices of care with children with autism. See, in particular, Park (2008) and Solomon (2010).