AUTISM STUDY FINDS HIGH RATES OF UNMET HEALTHCARE NEEDS: An Autism Speaks Analysis of National Survey Identifies Barriers to Care and Provides Guidance for New Programs to Address Needs across the Lifespan

The Exceptional Parent, February 2019 | Go to article overview

AUTISM STUDY FINDS HIGH RATES OF UNMET HEALTHCARE NEEDS: An Autism Speaks Analysis of National Survey Identifies Barriers to Care and Provides Guidance for New Programs to Address Needs across the Lifespan


Anew analysis of the National Survey of Children's Health finds that nearly a fifth of children with autism (18.8 percent) have unmet healthcare needs. This contrasts to 9.6 percent of children with other disabilities and 2.6 percent of children without disabilities.

The analysis also identifies the circumstances most strongly associated with unmet healthcare needs among children with autism. And it provides guidance on how public programs can better address these disparities across the lifespan.

The report, by Autism Speaks science and public policy experts, appears in the Journal of Autism and Developmental Disorders. It's based the 2016 National Survey of Children's Health. This federally funded survey of more than 50,000 parents recently made headlines for its finding that autism rates may be significantly higher than official estimates by the Centers for Disease Control and Prevention.

COMPLEX HEALTHCARE NEEDS

According to the national survey, 93 percent of children with autism have one or more co-occurring health conditions, compared to 62 percent of children with other disabilities. This finding is backed by considerable research associating autism with high rates of many medical and mental health issues, including seizures (epilepsy), digestive disorders, disrupted sleep, anxiety and depression, among others.

BARRIERS TO CARE

Yet these complex medical needs were not the sole or even the primary driver behind the disparities in access to needed services, according to the new analysis.

The circumstances strongly associated with unmet healthcare needs among children with autism were:

* no or low-quality health insurance

* no access to family-centered care (care that includes families as partners in their child's healthcare)

* adverse childhood conditions (family separation, divorce, physical or emotional abuse and domestic violence in the home, etc. …

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