Some Determinats of Quality of Life in Patients Suffering from Multiple Sclerosis

By Rashikj-Canevska, Olivera; Chichevska-Jovanova, Natasha | The Journal of Special Education and Rehabilitation, January 1, 2015 | Go to article overview

Some Determinats of Quality of Life in Patients Suffering from Multiple Sclerosis


Rashikj-Canevska, Olivera, Chichevska-Jovanova, Natasha, The Journal of Special Education and Rehabilitation


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Olivera RASHIKJ-CANEVSKA

Natasha CHICHEVSKA-JOVANOVA

University "Ss. Cyril and Methodius", Faculty of Philosophy, Institute of Special Education and Rehabilitation, Skopje, R. Macedonia

Recived: 22.01.2015

Accepted: 18.02.2015

Original Article

Correspondending address:

Olivera RASHIKJ CANEVSKA

Faculty of Philosophy,

Institute of Special Education and Rehabilitation

Blvd. Goce Delchev 9A, Skopje, R. Macedonia

E-mail: oliverarasic@fzf.ukim.edu.mk

Abstract

People with multiple sclerosis are faced with numerous challenges which in turn may affect the things they want to do or have a need to do. Very often, constraints caused by the disease reduce their ability to cope with and meet their responsibilities at home, at work and within a broader community transforming simple daily activities into daily frustrations.

The main goal of the research process was to present the life of persons with multiple sclerosis in the Republic of Macedonia, the problems they face every day, and the way they exceed them. We used the methods of structural, descriptive and functional analysis, as well as the method of generalization. We applied data (document) analysis, scaling and inquiry, and as a basic instrument we used a questionnaire composed of a combination of several scaling and index assessments. There was a convenient sample of the research composed of 32 persons with multiple sclerosis over the age of 18, and the results were obtained by a statistical analysis of the data and application of the combination of chi square tests, with a p<0.05 level of significance.

According to the results of the Index of disability, 47% of the people with multiple sclerosis have limited independence in providing daily activities leading up to 31% of the examinees with rare participation in the everyday social activities, the result obtained by the Frenchay Index of activities. We can conclude that the Index of disability is higher with older respondents and it is often followed by a drop of the daily activity frequency.

Keywords: multiple sclerosis, quality of life, Index of disability, independence

Introduction

The impact of multiple sclerosis on the human brain was described back in 1830, and as early as the 1860s different entities were identified. It is one of the most common neurological disorders among the young population (1).

Multiple sclerosis is a chronic unpredictable disease that belongs to the heterogeneous spectrum of an idiopathic, inflammatory, demyelinating disease of the central nervous system (CNS). The term multiple sclerosis is based on the pathonatomical findings and originates from the terms "sclerosis" meaning hardened slaty (plaques) scar tissue located at many locations in the CNS, marked as "multiplex". It is considered as an autoimmune disorder, meaning that the immune system incorrectly attacks the healthy tissue of the person. The signs and symptoms of the MS appear because the nerve fibers in the central nervous system (cranial brain and spinal cord) lose their ability for signal transmission. They are consequences of the neuropathological changes in the CNS. Pathoanatomical MS is characterized by foci of demyelination in different parts of the CNS, but with a predisposition to certain locations: optical nerves, brain stem and cerebellum (2, 3, 4).

It is estimated that about 2.5 million people around the world have MS. In the United States, about 200 new cases are diagnosed each week. An overall average estimated prevalence of the people suffering from MS in the world is 30 per 100.000 people, and in terms of the region's largest prevalence seen in Europe, 80 per 100.000 people, then in the Eastern Mediterranean 14.9, in America 8.3 people, in the Western Pacific and South-East Asia there are 2.8 per 100.000 people, and in Africa 0.3 per 100.000 people (5, 6). …

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