Women with Disabilities: Essays in Psychology, Culture, and Politics

By Michelle Fine; Adrienne Asch | Go to book overview

mation) that has meaning for that individual alone. Nevertheless, however distinctive the framing and the focus are, invariably they are situated in, and influenced by, the cultural ethos of which that individual is a part.


Notes
1.
The transformation process is dynamic, and occasional regression or retreat is essential to the continuation of the growth process. Therefore, I disagree with Vash's ( 1981:130) notion that regression necessarily is negative or a growth retardant.
2.
All personal and place names have been changed to protect the anonymity of the informant. The folklore genre that is the core of this study is the personal experience narrative, which I consider to be the medium for the individual's spontaneous oral composition, thematically connected to the traditional cultural ethos, yet articulated in the contexts of personal events and the narrator's perception of such events. See Dégh and Vázsonyi ( 1974), Honko ( 1964), and Stahl ( 1983) for various definitions of the personal experience narrative.
3.
See Looker ( 1933) for a treatment of Franklin Delano Roosevelt as the embodiment of the American cultural ethos of perseverance; see Alsop ( 1982) for a discussion of the personal anguish of Roosevelt in regard to his physical disability; see Gallagher ( 1985) for an analysis of Roosevelt's deficiencies as a role model for disabled persons.
4.
Margaret recognized the pejorative meaning of "cripple," yet, significantly, she elected to use the term in referring to her rejection of her ethnicity,
5.
I borrow the concept of elaborated narrative styles from Bernstein's ( 1964) discussion of elaborated versus restricted linguistic codes in terms of social structures. My notion of the personal experience narrative as a kind of spontaneous oral composition thematically linked to the traditional cultural ethos has been influenced by Lord ( 1978).

References

Allport, G. W 1958. The nature of prejudice. Reading, Mass.: Addison-Wesley.

Alsop, J. 1982. "Roosevelt remembered". Smithsonian Magazine (January): 45ff.

Barker, R. G., et al. 1953. Adjustments to physical handicap and illness: A survey of the social psychology of physique and disability. New York: Social Science Research Council.

Bateson, G. 1972. Steps to an ecology of mind. New York: Ballantine.

Bernstein, B. 1964. "Elaborated and restricted codes: Their social origins and some consequences". American Anthropologist 66(6):55-69.

Beuf, A. H. 1978. Presentation to the working group on stigmatized children. international Year of the Child Committee report. New York: United Nations.

Burke, K. 1957. The philosophy of literary form. New York: Vintage.

Darling, R. B. 1979. Families against society: A study of reactions to children with birth defects. Beverly Hills, Calif.: Sage.

Dégh, L., and A. Vázsonyi. 1974. "The memorate and the proto memorate". Journal of American Folklore 87:225-39.

-213-

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Women with Disabilities: Essays in Psychology, Culture, and Politics
Table of contents

Table of contents

  • Title Page iii
  • Contents v
  • Foreword ix
  • Foreword xi
  • Preface and Acknowledgments xiii
  • Introduction: Beyond Pedestals 1
  • Notes 31
  • References 32
  • I: Bodies and Images 39
  • Notes 40
  • 1. on Embodiment: A Case Study of Congenital LImb Deficiency in American Culture 41
  • Notes 68
  • References 70
  • 2.Sex Roles and Culture: Social and Personal Reactions to Breast Cancer 72
  • Notes 85
  • 3. in Search of A Heroine: Images of Women with Disabilities in Fiction and Drama 90
  • References 110
  • Ii: Disabled Women in Relationships 111
  • Notes 112
  • 4. the Construction of Gender and Disability in Early Attachment 115
  • References 136
  • 5. Daughters with Disabilities: Defective Women Or Minority Women? 139
  • References 170
  • 6. Friendship and Fairness: How Disability Affects Friendship Between Women 172
  • Notes 192
  • References 192
  • 7. Disability and Ethnicity in Conflict: A Study in Transformation 195
  • Notes 213
  • 8. Never-Married Old Women and Disability: A Majority Experience 215
  • Note 224
  • References 224
  • Iii:Policy and Politics 227
  • 9. Women, Work, and Disability: Opportunities and Challenges 229
  • References 243
  • 10. Disabled Women and Public Policies for Income Support 245
  • References 267
  • 11. Autonomy as A Different Voice: Women, Disabilities, and Decisions 269
  • Notes 292
  • 12. Shared Dreams: A Left Perspective on Disability Rights and Reproductive Rights 297
  • Notes 305
  • 13. Smashing ICons: Disabled Women and the Disability and Women's Movements 306
  • Notes 329
  • References 331
  • Epilogue: Research and Politics to Come 333
  • Notes 336
  • About the Contributors and Index 337
  • About the Contributors 339
  • Index 343
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