Measuring Health-Related Quality of Life in Children and Adolescents: Implications for Research and Practice

By Dennis Drotar | Go to book overview

long-valued components of children's primary health care (e.g., comprehensive, coordinated, longitudinal) still await testing of their impact on children's health. Similarly, the consequences of limiting access to health care, especially for children with special needs, should be assessed.


CONCLUSION

The current economic climate has led to restricted access to health-care services and an explicit rationing of those services in the United States. Significant changes in the health-care system are necessary to rectify the existing inequalities in child health status. Current policies require that those changes be preceded or at least accompanied by assessments that document that they are effective and appropriate. Measures of children's HRQOL that are scientifically sound and widely applicable can be extremely valuable tools to meet these policy requirements and ensure that the health-related needs of children are met.

The field of child health status measurement, especially the assessment of children's HRQOL, represents a unique intersection between science and advocacy. Consequently, child-health professionals should be actively engaged in the processes by which outcomes are chosen and their quality and effectiveness are measured. Outcome assessment using measures of HRQOL provides an important opportunity to document the effectiveness of services and support appropriate reimbursement for services that are valuable and valued by children and parents.


REFERENCES

Campbell, A., Converse, P. E., & Rodgers, W. L. ( 1976). The quality of American life. New York: Russell Sage.

Donabedian, A. ( 1966). "Evaluating the quality of medical care". Milbank Memorial Fund Quarterly, 44 ( 3, Supplement), 166-206

Dubos, R. ( 1959). Mirage of health. New York: Doubleday.

Eisen, M., Ware, J. E., Donald, C. A., & Brook, R. H. ( 1979). "Measuring Components of Children's Health Status". Medical Care, 17, 902-921.

Engel, G. L. ( 1977). "The need for a new medical model: A challenge for biomedicine". Science, 196, 129-136.

Greenfield, S., Rogers. W., Mangotich, M., Carney, M. D., & Tarlov, A. R. ( 1995). "Outcomes of patients with hypertension and non-insulin-dependent diabetes mellitus treated by different systems and specialties". Journal of the American Medical Association, 274, 1436-1444.

Grodin, M. A. & Glantz, C. H. ( 1994). Children as research subjects. New York: Oxford University Press.

Holman, H. R. ( 1976). "The excellence deception in medicine". Hospital Practice, 11, 18, 21.

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