It has become an acceptable statistical practice among some members of the scientific community to control for potential biases and influences when comparing differences in scores between groups or within individuals over time. Methodologists who employ a more qualitative and ethnographic approach to the study of science advocate the elucidation of these biases and influences, arguing that often they are the very issues that best inform our understanding of complex issues. Such studies are especially important given our findings and the changing ethnic diversity of children in the United States ( Lewit & Baker, 1994), the disparity in educational attainment for immigrant mothers ( Zill, 1996), the increase in the number of households headed by single parents ( Furstenberg, 1994), and the health consequences of work status ( Graetz, 1993). In light of the adoption and widespread avocation of assessments of HRQOL for children, advancing scientific understanding of the differences in the perception and reporting of physical and psychosocial health status based on gender, ethnicity, work, and family status and the relationship of these variables to the implementation of and adherence to complex medical regimens is tantamount.
This work was supported by internal funding at the Health Institute. The first author wishes to thank Mark Kosinski and John E. Ware, Jr. for their support on the NORC Project.
Achenbach, T. M., & Edelbrook, C. S. ( 1979). "The Child Behavior Profile: II. Boys aged 12-16 and girls aged 6-11 and 12-16". Journal of Consulting Clinical Psychology, 47, 223-233.
Bullers, S. ( 1994). "Women's roles and health: The mediating effect of perceived control". Women and Health, 22, 11-30.
Bullinger, M., Mackensen, S., & Landgraf, J. M. ( 1994). "Assessing the quality of life of children". Quality of Life Research, 3, 41.
Furstenberg, F. F. ( 1994). "History and current status of divorce in the United States". In R. Behrman (Ed.), The future of children: Children and divorce (pp. 29-43). Los Angeles: The Center for the Future of Children, The David and Lucile Packard Foundation.
Gilliam, F., Wyllie, E., Kashden, J., Kuzniecky, R., Faught, E., & Carr, S. ( 1995). "Comprehensive outcome from pediatric epilepsy surgery". Epilepsia, 36, 140.
Gilliam, F., Comair, Y., Morawetz, R., Wyllie, E., Kashden, J., Faught, E., Kotagal, P. , Bebin, M., Wise, M., & Kuzniecky, R. ( 1997). "Epilepsy surgery outcome: Comprehensive assessment in children". Neurology, 48, 1368-1374.
Graetz, B. ( 1993). "Health consequences of employment and unemployment: Longitudinal evidence for young men and women". Social Science and Medicine, 36, 715-724.