Family Caregivers: Disability, Illness, and Ageing

By Hilary Schofield; Sidney Bloch et al. | Go to book overview

APPENDIX II
SURVEY METHODS

SURVEY INSTRUMENT
Information gathered in the Stage 1 structured interview included the following:
A. In relation to the cater, socio-demographic data (age, sex, marital status, education level, employment status, relationship to care-recipient, relationship to carer), and various measures of physical and emotional well-being and mediating factors. Physical health was assessed by a four-point rating scale, which has been found to be a good predictor of survival, 1 having a major illness in the past year and use of medication. Life satisfaction was assessed on a six-item scale covering health, personal, emotional life, independence, financial situation, respect and recognition (based on Headey & Wearing 1981). Psychological well-being was measured by Watson's twenty- item Positive and Negative Affect mood scales. Substantial positive correlations have been reported between the Negative Affect scale and the Hopkins Symptom Checklist, Beck Depression Inventory and STAI State Anxiety Scale ( Watson et al. 1988). For social support, a seven-item modified version of the Provision of Social Relations Scale was used ( Turner et al. 1983). Overload in the cater was assessed by three items from the four-item scale developed by Pearlin and colleagues ( 1990). The extent to which there was more or less conflict or closeness in the family environment since the onset of caregiving was assessed using two three-item scales (family closeness and family conflict).
B. In relation to the caregiving role, in addition to factual information such as hours spent caring, there were three attitudinal scales including:
carer 'satisfaction' containing seven items assessing a positive emotional response to the care-recipient and the caregiving role
carer 'resentment' with five items focusing on the negative effects of caregiving on the carer's life, time, opportunities and social relationships
carer 'anger' containing four items assessing negative emotional responses to the care-recipient such as anger, embarrassment and guilt.

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